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Contrasting Comprehension of HIV Research by Adolescents, Young Adults, and Caregivers in Western Kenya: A Cross-sectional Analysis.

J Assoc Nurses AIDS Care

August 2022

Jessica Dyer, MPH, is a Research Scientist, Department of Child, Family, Population Health Nursing at the University of Washington, Seattle, Washington, USA. Seema K. Shah, JD, is an Associate Professor, Northwestern University Medical School/Bioethics Program at Lurie Children's Hospital, Chicago, Illinois, USA. Kawango Agot, PhD, is the Executive Director, Impact Research and Development Organization, Kisumu, Kenya. Kate Wilson, PhD, is a Research Scientist, Department of Global Health, University of Washington, Seattle, Washington, USA. Risper Bosire is a Research Monitor, Impact Research and Development Organization, Kisumu, Kenya. Jacinta Badia, MPH, is a Research Coordinator, Impact Research and Development Organization, Kisumu, Kenya. Irene Inwani, MD, MPH, is the Assistant Director, Kenyatta National Hospital, Nairobi, Kenya. Kristin Beima-Sofie, MPH, PhD, is an Acting Assistant Professor, Department of Global Health, University of Washington, Seattle, Washington, USA. Barbra A. Richardson, PhD, is a Research Professor, Department of Biostatistics, and an Adjunct Research Professor, Department of Global Health at the University of Washington School of Public Health and Community Medicine, Seattle, Washington, USA. Grace John-Stewart, MD, PhD, is a Professor, Global Health, Epidemiology, Medicine, and Pediatrics, University of Washington, Seattle, Washington, USA. Pamela Kohler, RN, MPH, PhD, holds a joint appointment in the Department of Child, Family, Population Health Nursing, University of Washington and the Department of Global Health, Seattle, Washington, USA.

Adolescent participation in research is critical to inform interventions that improve outcomes for this group. Adolescents and young adults living with HIV often present to care without caregivers, yet caregiver permission is typically required for those younger than 18 years. We evaluated whether understanding of key consent information differed between adolescents ( n = 1,393) and caregiver adults ( n = 169).

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