3 results match your criteria: "University of Sheffield (SITraN)[Affiliation]"
Guidance for clinical management of pathogenic variant carriers at elevated genetic risk for ALS/FTD.
J Neurol Neurosurg Psychiatry
November 2024
Department of Basic and Clinical Neuroscience, King's College London, London, UK.
Article Synopsis
- There is an increasing awareness of the early stages of amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD), leading to new efforts aimed at prevention, largely driven by the participation of individuals at genetic risk. !* -
- A recent workshop outlined recommendations for clinical care and lifestyle management tailored to those at elevated risk for ALS and FTD, covering aspects such as genetic testing, early symptom monitoring, and FDA-approved treatments. !* -
- The guidance document seeks to inform both patients and healthcare providers about best practices and highlights the need for further research to strengthen evidence for future recommendations. !*
The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design.
Amyotroph Lateral Scler Frontotemporal Degener
August 2018
a Sheffield Institute for Translational Neuroscience , University of Sheffield (SITraN), Sheffield , UK.
Objectives: Attendance at a specialist multidisciplinary motor neurone disease (MND) clinic is associated with improved survival and may also improve quality of life and reduce hospital admissions. However, patients struggle to travel to clinic and may experience difficulties between clinic visits that may not be addressed in a timely manner. We wanted to explore how we could improve access to specialist MND care.
View Article and Find Full Text PDFUsing technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review.
Amyotroph Lateral Scler Frontotemporal Degener
October 2017
a Sheffield Institute for Translational Neuroscience, University of Sheffield (SITraN), Sheffield , UK .
Our objective was to review the evidence for using technology to improve access to specialist care for patients with amyotrophic lateral sclerosis (ALS) and their carers. Medline, Google Scholar and the Cochrane library were searched for articles describing technology that enabled clinical care of patients with ALS or their carers where the patient/carer and clinician were not in the same location. Two applications were identified: telemedicine to facilitate video conferencing as an alternative to outpatient consultations and telehealth monitoring for patients with respiratory failure.
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