3 results match your criteria: "University Hospital of Copenhagen-Bispebjerg and Frederiksberg[Affiliation]"
Impact of elexacaftor/tezacaftor/ivacaftor on utilization of routine therapies in cystic fibrosis: Danish nationwide register study.
J Cyst Fibros
November 2024
Department of Clinical Pharmacology, Copenhagen University Hospital - Bispebjerg and Frederiksberg, Denmark; Copenhagen Phase IV Unit, Department of Clinical Pharmacology and Center for Clinical Research and Prevention, University Hospital of Copenhagen - Bispebjerg and Frederiksberg, Denmark; Department of Infectious Diseases, University Hospital of Copenhagen - Rigshospitalet, Cystic Fibrosis Centre, Denmark; Department of Pediatrics, University Hospital of Copenhagen - Rigshospitalet, Cystic Fibrosis Centre, Denmark; Department of Pediatrics and Adolescent Medicine, Aarhus University Hospital, Denmark; Department of Infectious Diseases, Aarhus University Hospital, Denmark.
Background: Elexacaftor/tezacaftor/ivacaftor (ETI) has been effective in improving several outcomes in people living with cystic fibrosis (pwCF). Although clinical guidance regarding maintenance therapies has not changed, staff reports indicate that individuals reduce some therapies. This study aimed to evaluate ETI's effect on utilization of routine therapies among pwCF in Denmark.
View Article and Find Full Text PDFIdentifying people living with cystic fibrosis in the Danish National Patient Registry: A validation study.
J Cyst Fibros
November 2024
Copenhagen Phase IV Unit, Department of Clinical Pharmacology and Center for Clinical Research and Prevention, University Hospital of Copenhagen-Bispebjerg and Frederiksberg, Denmark.
Background: The Danish National Patient Registry (DNPR) serves as a valuable resource for scientific research. However, to ensure accurate results in cystic fibrosis (CF) studies that rely on DNPR data, a robust case-identification algorithm is essential. This study aimed to develop and validate algorithms for the reliable identification of CF patients in the DNPR.
View Article and Find Full Text PDFEducation, employment, and income among people living with cystic fibrosis across three decades - A matched cohort study using Danish health registries.
J Cyst Fibros
September 2024
Copenhagen Phase IV Unit, Department of Clinical Pharmacology and Center for Clinical Research and Prevention, University Hospital of Copenhagen - Bispebjerg and Frederiksberg, DK, Denmark; Department of Infectious Diseases, University Hospital of Copenhagen - Rigshospitalet, Cystic Fibrosis Centre, DK, Denmark; Department of Pediatrics and Adolescent Medicine, University Hospital of Copenhagen - Rigshospitalet, Cystic Fibrosis Centre, DK, Denmark; Department of Infectious Diseases, Aarhus University Hospital, DK, Denmark; Department of Pediatrics and Adolescent Medicine, Aarhus University Hospital, DK, Denmark; Department of Clinical Pharmacology, Copenhagen University Hospital - Bispebjerg and Frederiksberg, DK, Denmark.
Background: Past and ongoing advancements in cystic fibrosis (CF) care warrant long-term analysis of the societal impact of the condition. This study aims to evaluate changes in key socioeconomic factors across three decades among people living with CF (pwCF), compared with both the general population and an early-onset chronic disease population.
Methods: This nationwide, registry-based, matched cohort study included all pwCF ≥ 18 years in Denmark in the years 1990, 2000, 2010, and 2018.