8 results match your criteria: "The National Rehabilitation Center for Neuromuscular Diseases[Affiliation]"

Purpose: The purpose of this study was to understand how spousal caregivers of people with amyotrophic lateral sclerosis and cognitive and/or behavioural impairments felt about the EMBRACE intervention.

Materials And Methods: A qualitative interpretive study, using individual semi-structured interviews pre- and post-participation in a palliative rehabilitation blended learning programme, was applied. In total, 13 spousal caregivers were interviewed pre-intervention and 10 of them post-intervention.

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Article Synopsis
  • * A working group of MG experts from five Nordic countries created treatment guidance based on thorough literature reviews and discussions, identifying first-line and second-line therapies, including medications and surgical options.
  • * Treatment for MG often requires a combination of therapies, ongoing specialized care, and consideration of lifestyle adaptations, with recent developments in novel treatments and the importance of pregnancy planning for affected women.
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Rationale: Family caregivers of persons with amyotrophic lateral sclerosis and cognitive and/or behavioural impairments (PALS/CIs) experience various challenges and needs, including emotional and practical support from peers. Various forms of peer-support have shown different strengths and weaknesses; however, little is known about how family caregivers of PALS/CIs interact with and perceive virtual face-to-face peer-support.

Aims And Objectives: The aim of this study was to understand how caregivers of PALS/CIs interact with and perceive virtual face-to-face peer-support in a palliative rehabilitation programme designed to promote targeted palliative rehabilitation initiatives for caregivers of PALS/CIs.

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Self-monitoring of self-management interventions with the use of mobile health (mHealth) can enhance patients' well-being. Research indicates that mHealth and health coaching act symbiotically to providing a more constructive outcome. Nurse coaches seem to have a significant role in translating the patients' tracked data.

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Purpose: Spinal cord injury is a complex condition requiring long-term rehabilitation. Goal-setting is considered an essential part of rehabilitation, however, knowledge of how goal-setting is practised across health-care professions, settings and diagnoses are scarce. The purpose of the study was therefore to explore health-care professionals' perspectives on goal-setting practice in outpatient multidisciplinary rehabilitation targeting patients with spinal cord injury.

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Purpose: Spinal cord injury (SCI) is a complex health condition requiring long-term rehabilitation. Person-centred goal-setting is a central component of rehabilitation. However, knowledge of patients' perspectives on the goal-setting in SCI rehabilitation is scarce.

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Reflections on the Complexity of Normalcy in Nursing and Health Care.

ANS Adv Nurs Sci

May 2023

The National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark (Dr Handberg); Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark (Drs Handberg and Beedholm); Department of Clinical Medicine, Aarhus University, and Department of Gynecology and Obstetrics, Aarhus University Hospital, Aarhus, Denmark (Dr Seibæk); Institute of Nursing & Health Science, Ilisimatusarfik, Greenland (Dr Seibæk); and School of Nursing, University of British Columbia, Vancouver, Canada (Dr Thorne).

Striving for normalcy plays an important role in patients' quality of life and illness experience. Normalcy is a powerful and complex idea, and the term can be used intentionally or unintentionally to various effects. We aimed to raise awareness of the complexity of this idea of normalcy and thus promote a more critically reflective understanding among nurses and other health professionals.

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