Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.

Unlabelled: Despite growing appreciation of the need for research on autism in adulthood, few survey instruments have been validated for use with autistic adults. We conducted an institutional ethnography of two related partnerships that used participatory approaches to conduct research in collaboration with autistic people and people with intellectual disability. In this article, we focus on lessons learned from adapting survey instruments for use in six separate studies.

Current State of Child Health in Rural America: How Context Shapes Children's Health.

Purpose: Children's health is influenced by the context in which they live. We provide a descriptive essay on the status of children in rural America to highlight features of the rural environment that may affect health.

Description: We compiled information concerning components of the rural environment that may contribute to health outcomes.

An investigation into the temporal scaling of community participation measurement.

Purpose: Community participation remains fundamental to contemporary models of disability. However, the effect of temporal scaling on the measurement of participation has not been explored. This study examined the similarities and differences between two different temporal scales (i.

Obesity in children with developmental and/or physical disabilities.

Children with developmental or physical disabilities, many of whom face serious health-related conditions, also are affected by the current obesity crisis. Although evidence indicates that children with disabilities have a higher prevalence of obesity than do children without disabilities, little is known of the actual magnitude of the problem in this population. To address this concern, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) held a conference on obesity in children with intellectual, developmental, or physical disabilities, bringing together scientists and practitioners in the fields of obesity and disability to foster collaboration, identify barriers to healthy weight status in populations with disabilities, propose avenues to solutions through research and practice, and develop a research agenda to address the problem.

Happiness, Pain Intensity, Pain Interference, and Distress in Individuals with Physical Disabilities.

Objectives: The aim of this study was to examine how the construct of happiness is related to pain intensity, pain interference, and distress in individuals with physical disabilities.

Design: This study involves cross-sectional analyses of 471 individuals with a variety of health conditions reporting at least mild pain.

Results: The first hypothesis that happiness mediates the relationship between pain intensity and two outcomes, pain interference and distress, was not supported.

Depression and depression treatment in women with spinal cord injury.

Background: Research has documented high rates of depression in people with spinal cord injury (SCI); however, most SCI research is conducted with predominantly male study participants. Additional research is needed on depression and depression treatment among women with SCI.

Objective: Study objectives were to examine depression, correlates of depression, and depression treatment in a sample of women with SCI.

Depressive symptoms in women with physical disabilities: identifying correlates to inform practice.

Objective: To examine correlates of depressive symptomatology in a sample of women with diverse physical disabilities to inform practice of modifiable risk factors that warrant attention and intervention.

Design: Interview survey.

Setting: Outpatient chronic care clinics.

Prevalence of interpersonal violence against community-living adults with disabilities: a literature review.

Objective: To review the empirical literature on the prevalence of interpersonal violence (IPV) against people with disabilities.

Method: The authors searched for, obtained, and reviewed 6,000 abstracts published between January, 2000 and August, 2010 via searches in PsycINFO and PubMed. Subsequently, 177 potentially applicable full-text articles were independently assessed for inclusion; 22 articles describing 21 individual studies were included in this review.

Development of a safety awareness group intervention for women with diverse disabilities: a pilot study.

Objective: Describe the development and preliminary evaluation of a safety awareness program for women with disabilities.

Design: Baseline and postintervention questionnaires administered to a sample of women who completed a safety awareness program.

Participants: Seven women with diverse disabilities.

Efficacy of a computerized abuse and safety assessment intervention for women with disabilities: a randomized controlled trial.

Objective: To evaluate the effects of a computerized disability-specific abuse assessment intervention on abuse awareness, safety self-efficacy, and safety promoting behaviors of women with diverse disabilities.

Research Design: A randomized control group design was used, with the intervention group completing the assessment intervention both at Time 1 (T1) and 3 months later at Time 2 (T2) and control participants completing it for the first time at T2. Analyses compared intervention and control groups at T2 and evaluated change over time in intervention group participants.

Nutrition and adults with intellectual or developmental disabilities: systematic literature review results.

Approximately 4.5 million Americans have an intellectual or developmental disability. Concern is increasing about these individuals' nutrition-related behavior and its implications for their health.

Correlates of depression in rural women with physical disabilities.

Objective: To describe demographic and disability-related characteristics, to examine the patterns of treatment for depression, and to investigate correlates of depression severity and predictors of who receives treatment among a sample of depressed rural women with physical disabilities.

Design: A correlational analysis of data gathered from women recruited for a depression intervention study.

Setting: Rural centers for independent living located in nine different states across the United States.

Prevention of secondary health conditions in adults with developmental disabilities: a review of the literature.

Purpose: To compile empirical findings regarding prevention strategies for secondary conditions experienced by adults with developmental disabilities.

Method: The PsycLit and PubMed databases were searched for articles addressing the 20 most pervasive secondary conditions and the prevention of secondary conditions in general.

Results: Of more than 2000 articles examined, 25 met criteria for inclusion.