5 results match your criteria: "Reference Center for Rare Digestive Diseases in Children[Affiliation]"
JPGN Rep
May 2024
Division of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
Unlabelled: Facing with an increasing demand for transition to adult care management, our home parenteral nutrition (HPN) team designed an adolescent therapeutic educational program (ATEP) specifically intended for adolescents on long-term HPN. The aim of this study was to report on the first sessions of this program.
Methods: The ATEP is designed in three sessions of five consecutive days, during school holidays over the year.
Clin Nutr
October 2021
Division of Pediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades University of Paris-UFR Paris Descartes, Certified Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children, Paris, France. Electronic address:
Background And Aims: Home Parenteral Nutrition (HPN) is the cornerstone management for children suffering from chronic intestinal failure (CIF). In France, HPN is organized from a network of 7 certified centers located in University Hospitals spread across the national territory. This study aims to review the data involving children on HPN over a 6-years period in France to outline the global and continuous improvement in care.
View Article and Find Full Text PDFJPEN J Parenter Enteral Nutr
January 2018
Department of Pediatric Gastroenterology, Hepatology and Nutrition, National Reference Center for Rare Digestive Diseases in Children, APHP, Necker Enfants Malades University Hospital, Paris, France.
Background: Infants with intestinal failure (IF) are at increased risk of malnutrition and require adapted nutrition support. Optimal weight gain during nutrition rehabilitation should occur at the velocity of statural age (adjusted to the 50 percentile of height) and not chronological age. The aim of this study was to assess the relationship between weight gain during catch-up growth, nonprotein energy intake (NPEI) provided by total parenteral nutrition (TPN), and resting energy expenditure (REE) in children with severe malnutrition due to IF.
View Article and Find Full Text PDFAm J Clin Nutr
May 2016
Departments of Pediatric Gastroenterology, Hepatology and Nutrition, Paris Descartes University, Paris, France; and.
Background: Parenteral nutrition (PN) is the main treatment for intestinal failure.
Objective: We aimed to review the indications for home parenteral nutrition (HPN) in children and describe the outcome over a 14-y period from a single center.
Design: We conducted a retrospective study that included all children who were referred to our institution and discharged while receiving HPN between 1 January 2000 and 31 December 2013.
Am J Clin Nutr
April 2013
Department of Pediatric Gastroenterology, Hepatology, and Nutrition, National Reference Center for Rare Digestive Diseases in Children, APHP, Necker-Enfants Malades Hospital, Paris Descartes University, Paris, France.
Background: Small bowel transplantation has now become a recognized treatment of irreversible, permanent, and subtotal intestinal failure.
Objective: The aim of this study was to assess intestinal absorption at the time of weaning from parenteral nutrition in a series of children after intestinal transplantation.
Design: Twenty-four children (age range: 14-115 mo) received intestinal transplantation, together with the liver in 6 children and the colon in 16 children.