4 results match your criteria: "Leuven Institute for Genomics and Society[Affiliation]"
Establishing the International Genetic Discrimination Observatory.
Nat Genet
May 2020
Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans.
Eur J Hum Genet
January 2018
Department of Clinical Genetics, Section Community Genetics and EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.
Gene editing, which allows for specific location(s) in the genome to be targeted and altered by deleting, adding or substituting nucleotides, is currently the subject of important academic and policy discussions. With the advent of efficient tools, such as CRISPR-Cas9, the plausibility of using gene editing safely in humans for either somatic or germ line gene editing is being considered seriously. Beyond safety issues, somatic gene editing in humans does raise ethical, legal and social issues (ELSI), however, it is suggested to be less challenging to existing ethical and legal frameworks; indeed somatic gene editing is already applied in (pre-) clinical trials.
View Article and Find Full Text PDFGenuine participation in participant-centred research initiatives: the rhetoric and the potential reality.
J Community Genet
April 2018
Leuven Institute for Genomics and Society, KU Leuven, Leuven, Belgium.
Article Synopsis
- The rise of Web 2.0 technology and advancements in genetic testing have led to an increase in participant-centered research, leveraging ICT to enhance research participation.
- However, much of this "participation" is superficial, primarily increasing contact without meaningful engagement, often inflating the true nature of participatory involvement.
- The paper argues for a more genuine form of ICT-based participation, outlining three essential elements—education, involvement, and control—and proposes practical steps to enhance these aspects for better engagement in research initiatives.
Paternity testing under the cloak of recreational genetics.
Eur J Hum Genet
June 2017
Leuven Institute for Genomics and Society (LIGAS), KU Leuven, Leuven, Belgium.
Direct-to-consumer (DTC) internet companies are selling widely advertised and highly popular genetic ancestry tests to the broad public. These tests are often classified as falling within the scope of so-called 'recreational genetics', but little is known about the impact of using these services. In this study, a particular focus is whether minors (and under what conditions) should be able to participate in the use of these DTC tests.
View Article and Find Full Text PDF