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Current Status, Goals, and Research Agenda for Outcome Measures Development in Behçet Syndrome: Report from OMERACT 2014.
J Rheumatol
December 2015
From the Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA.G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul Universit
Objective: There is an unmet need for reliable, validated, and widely accepted outcomes and outcome measures for use in clinical trials in Behçet syndrome (BS). Our report summarizes initial steps taken by the Outcome Measures in Rheumatology (OMERACT) vasculitis working group toward developing a core set of outcome measures for BS according to the OMERACT methodology, including the OMERACT Filter 2.0, and discussions during the first meeting of the BS working group held during OMERACT 12 (2014).
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