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Experiences of Ambulatory Patients With Huntington's Disease With Case Management: A Qualitative Study.
Prof Case Manag
November 2023
Cindy Kruijthof, MSW, is a registered nurse and an experienced case manager for people with Huntington's disease for 7 years. In 2022, she obtained her Master's degree in Social Work. She is affiliated with Atlant, Huntington Centre of Expertise, Apeldoorn, the Netherlands.
Purpose/objectives: Huntington's disease (HD) requires high-quality care to reduce disruption of the patient system, prevent crisis situations, and prevent early admission in a nursing home. In the Netherlands, case management has been available for the last to 9 years for people with HD. However, there is a notable gap in understanding experiences and beliefs of HD patients regarding case managers' care, guidance, and support for quality of life.
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