2 results match your criteria: "French National Referral Centre for Cardiac Amyloidosis[Affiliation]"
Amylo-AFFECT-QOL, a self-reported questionnaire to assess health-related quality of life and to determine the prognosis in cardiac amyloidosis.
Front Cardiovasc Med
March 2023
AP-HP (Assistance Publique-Hôpitaux de Paris), Department of Cardiology, Henri Mondor University Hospital, Créteil, France.
Article Synopsis
- The study aimed to validate the Amylo-AFFECT-QOL questionnaire to measure health-related quality of life (HR-QoL) in patients with cardiac amyloidosis (CA), as no specific questionnaire existed for this condition.
- It involved 515 patients, primarily those diagnosed with CA, and showed that the Amylo-AFFECT-QOL scores significantly correlated with established HR-QoL assessments, indicating its reliability.
- Findings revealed that those with cardiac amyloidosis had worse HR-QoL scores compared to other conditions, and higher scores were associated with increased mortality or heart transplant risk after one year.
Unlabelled: Heart transplantation in cardiac amyloidosis (CA) patients is possible and generally considered for transplantation if other organs are not affected. In this study, we aimed to describe and assess outcome in patients following heart transplantations at our CA referral center.
Methods: We assessed all CA patients that had heart transplantations at our center between 2005 and 2018.