Complications of haemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System.

Aim: To describe the prevalence and complications in babies ≤2 years with haemophilia.

Methods: We used a standardized collection tool to obtain consented data on eligible babies aged ≤2 years with haemophilia enrolled in the Centers for Disease Control and Prevention Universal Data Collection System surveillance project at US Hemophilia Treatment Centers (HTCs).

Results: Of 547 babies, 82% had haemophilia A, and 70% were diagnosed within one month of birth.