1 results match your criteria: "Deparment of Medicine Queen's University Kingston Ontario Canada.[Affiliation]"
Article Synopsis
- Hemophilia carriers experience abnormal bleeding but lack awareness and proper care due to knowledge gaps and barriers.
- The study aimed to identify these gaps from the viewpoints of hemophilia carriers and healthcare providers through focus groups and questionnaires.
- Key challenges identified included psychosocial impacts, understanding symptom significance, self-advocacy needs, and testing concerns, with both groups emphasizing the importance of education on abnormal bleeding and genetic testing considerations.