257 results match your criteria: "Cornwall Partnership NHS Foundation Trust & Exeter medical school[Affiliation]"

Background: The management of vulval disorders in Genitourinary Medicine (GUM) clinics requires targeted approaches due to the wide range of conditions affecting the vulva. Vulval diseases encompass various aetiologies, including dermatoses, pain syndromes, and pre-malignant conditions, necessitating specialized care often involving multidisciplinary collaboration.

Purpose: This guideline aims to provide evidence-based recommendations for the diagnosis and management of specific vulval conditions that may present in GUM clinics.

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Background: Epilepsy is one of the commonest neurological conditions worldwide and confers a significant mortality risk, partly driven by status epilepticus (SE). Terminating SE is the goal of pharmaceutical rescue therapies. This survey evaluates UK-based healthcare professionals' clinical practice and experience in community-based rescue therapy prescribing.

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Network-based biomarkers in background electroencephalography in childhood epilepsies-A scoping review and narrative synthesis.

Seizure

January 2025

Neuronostics, Bristol, United Kingdom; Centre for Systems Modelling and Quantitative Biomedicine, University of Birmingham, Birmingham B15 2TT, United Kingdom; Institute of Metabolism and Systems Research, University of Birmingham, Birmingham B15 2TT, United Kingdom.

Background: Brain network analysis is an emerging field of research that could lead to the development, testing and validation of novel biomarkers for epilepsy. This could shorten the diagnostic uncertainty period, improve treatment, decrease seizure risk and lead to better management. This scoping review summarises the current state of electroencephalogram (EEG)-based network abnormalities for childhood epilepsies.

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Treatment of Seizures in People with Intellectual Disability.

CNS Drugs

January 2025

Cornwall Intellectual Disability Equitable Research (CIDER), University of Plymouth, Truro, England.

There is a synergistic relationship between epilepsy and intellectual disability (ID), and the approach to managing people with these conditions needs to be holistic. Epilepsy is the main co-morbidity associated with ID, and clinical presentation tends to be complex, associated with higher rates of treatment resistance, multi-morbidity and premature mortality. Despite this relationship, there is limited level 1 evidence to inform treatment choice for this vulnerable population.

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SpeechMatch-A novel digital approach to supporting communication for neurodiverse groups.

Healthc Technol Lett

December 2024

Department of Intellectual Disability Neuropsychiatry, Research Team Cornwall Partnership NHS Foundation Trust Truro UK.

Communication can be a challenge for a significant minority of the population. Those with intellectual disability, autism, or Stroke survivors can encounter significant problems and stigma in their communication abilities leading to worse health and social outcomes. SpeechMatch (https://www.

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Introduction: Understanding patients' experiences is important when developing interventions for people living with persistent pain. Interviews and focus groups are frequently used to capture beliefs, views, and perspectives. These methods often require a commitment to a predetermined date and time that may present a barrier to participation.

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Subcutaneous electroencephalography monitoring for people with epilepsy and intellectual disability: co-production workshops.

BJPsych Open

December 2024

Cornwall Intellectual Disability Equitable Research (CIDER), Cornwall Partnership NHS Foundation Trust, Bodmin, UK; and Peninsula Medical School, Faculty of Health, University of Plymouth, Plymouth, UK.

Background: Nearly 25% of people with intellectual disability (PwID) have epilepsy compared to 1% of the UK general population. PwID are commonly excluded from research, eventually affecting their care. Understanding seizures in PwID is particularly challenging because of reliance on subjective external observation and poor objective validation.

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Understanding the current provisions of support for people with an intellectual disabilities and/or autism in crisis: A mixed methods study.

Int J Soc Psychiatry

December 2024

Cornwall Intellectual Disability Equitable Research, Cornwall Partnership NHS Foundation Trust, Truro, UK.

Background: There has been significant reduction in inpatient beds for people with intellectual disability and/or autism (PwID/A) in the UK in the last decade following high profile national scandals in specialist psychiatric hospitals. To reduce inappropriate admissions a new strategy (Blue-Light, an emergency multi-disciplinary meeting to prevent admission to hospital) was introduced. However, there is no research on the influence of Blue-Light on crisis management for PwID/A.

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Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs.

Br J Psychiatry

December 2024

Cornwall Intellectual Disability Equitable Research (CIDER), Cornwall Partnership NHS Foundation Trust, Truro, UK; and CIDER, Peninsula School of Medicine, University of Plymouth, UK.

Article Synopsis
  • The Department of Health and Social Care released a report in November 2023, highlighting the negative impacts of solitary confinement on people with learning disabilities and autism, but the recommendations are largely not supported by evidence-based practices.
  • The report raises issues regarding the terminology used, such as "solitary confinement," assumptions about long-term segregation, and unfairly placing responsibility on clinicians for situations outside their control.
  • A critical appraisal of the report aims to summarize its potential benefits while pointing out specific concerns and advocating for best practices in mental health care.
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Objectives: The aim of this study was to explore Allied Health Professions (AHP) support worker perceptions of feeling valued and to understand what factors contribute to this feeling of "value".

Design: This was a qualitative study with semi-structured interviews undertaken virtually. The data were analysed using a process of thematic analysis in order to gain an in depth understanding of the factors that affect support workers feeling "valued".

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Background: Multidisciplinary care planning for people with intellectual disabilities who engage in behaviours of concern (BoC) is challenging and complex. Effective collaborative understanding and action planning across all stakeholders is essential. Cornwall's Adult Community Learning Disability Team developed a care planning tool () using contemporary evidence and best practice.

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The evaluation of health recommender systems: A scoping review.

Int J Med Inform

November 2024

Translational and Clinical Research Institute, Newcastle University, Newcastle upon Tyne NE1 7RU, United Kingdom; Department of Primary Care and Public Health, School of Public Health, Imperial College London, London W6 8RP, United Kingdom. Electronic address:

Background: People often look online for information about health concerns, but the vast amount of available and unregulated content can cause misinformation and potential harm. Health recommender systems (HRSs) can address this issue by recommending personalised health information. Previous research has evaluated individual systems, but there is a lack of reviews synthesising their evaluation findings.

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Background: There is growing evidence that spending time with or in nature can be beneficial for health and wellbeing. Emerging evidence suggests potential benefits for staff and service users in healthcare settings, yet little is known about how to put Nature-based approaches (NBAs) into practice within the Child and Adolescent Mental Health Services (CAMHS) setting. The CAMHS Goes Wild project in Southwest England aimed to explore the implementation of NBAs within CAMHS, examining staff attitudes and understanding to identify potential benefits and challenges through a mixed methods study.

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The potential unintended consequences of Mental Health Act reforms in England and Wales on people with intellectual disability and/or autism: commentary, author response, Tromans et al.

Br J Psychiatry

September 2024

Faculty of Psychiatry of Intellectual Disability, Royal College of Psychiatrists, London, UK; Peninsula School of Medicine, University of Plymouth, UK; and Cornwall Partnership NHS Foundation Trust, Truro, UK.

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Background: Adherence to anti-seizure medication (ASM) by people diagnosed with epilepsy in sub-Saharan Africa remains low. The factors for low adherence are not well understood. To improve adherence, it is important to understand the perceptions and views of healthcare professionals delivering epilepsy care to this population.

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Evidencing the challenges of care delivery for people with intellectual disability and epilepsy in England by using the Step Together toolkit.

BJPsych Open

October 2024

Cornwall Intellectual Disability Equitable Research (CIDER), University of Plymouth Peninsula School of Medicine, UK; School of Nursing and Midwifery (Faculty of Health), University of Plymouth, UK; and Cornwall Intellectual Disability Equitable Research (CIDER), Cornwall Partnership NHS Foundation Trust, UK.

Background: People with intellectual disability (PwID) and epilepsy have increased premature and potentially preventable mortality. This is related to a lack of equitable access to appropriate care. The Step Together guidance and toolkit, developed with patient, clinical, charity and commissioning stakeholders, allows evaluation and benchmarking of essential epilepsy service provision for PwID in eight key domains, at a care system level.

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Background: Outcome measurement is essential to determine the effectiveness of health interventions and improve the quality of services. The interplay of social, individual, and biological factors makes this a complex process in the psychiatry of people with intellectual disability (PwID).

Aim: Review of outcome measures which are validated in PwID.

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Background: People increasingly rely on online health information for their health-related decision-making. Given the overwhelming amount of information available, the risk of misinformation is high. Health recommender systems, which recommend personalised health-related information or interventions using intelligent algorithms, have the potential to address this issue.

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Primary care experiences of adults reporting learning disability: a probability sample survey.

Br J Gen Pract

December 2024

School of Health and Medicine, City St George's, University of London, London, and affiliated researcher, National Centre for Social Research, London.

Background: Adults with learning disability face multiple adversities, but evidence on their needs and primary care experiences is limited.

Aim: To compare the characteristics and primary care experiences of adults reporting learning disability with those who did not.

Design And Setting: This was an analysis of the 2022 General Practice Patient Survey, a national probability sample survey conducted in 2022 with people registered with NHS primary care in England.

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Background: Epilepsy prevalence in sub-Saharan Africa is high with a significant treatment gap. In this context, epilepsy presents substantial challenges to effective and safe reproductive and maternal healthcare. To improve this, it is important to understand the views and perceptions of healthcare professionals delivering epilepsy care to this population.

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Article Synopsis
  • The review aimed to explore how occupational therapists utilize natural and outdoor spaces in mental health care, focusing on the types of environments, interventions used, mental health conditions addressed, and outcomes achieved.
  • Research indicates a positive correlation between health and the natural environment, suggesting that outdoor settings can significantly benefit individuals with mental health issues, which occupational therapists should integrate into their practices.
  • The review included a wide range of studies on the usage of outdoor spaces for mental health therapy, with no restrictions on demographics or geographical locations, and involved comprehensive database searches and data extraction methods.
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Relationship between anti-seizure medication and behaviors that challenge in older persons with intellectual disability and epilepsy: a review.

Expert Rev Neurother

November 2024

Cornwall Intellectual Disability Research (CIDER), Peninsula Schools of Medicine and Dentistry, University of Plymouth, England, UK.

Introduction: There is increased focus on the negative impact of the overprescribing of medication, specifically psychotropic medication, including anti-seizure medications (ASM), in people with Intellectual Disability (ID). This is particularly important for the older adult population, where multi-morbidity and polypharmacy are more common. ASMs are associated with psychiatric and behavioral adverse effects.

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Background: Atopic dermatitis (eczema), can have a significant impact on well-being and quality of life for affected people and their families. Standard treatment is avoidance of triggers or irritants and regular application of emollients and topical steroids or calcineurin inhibitors. Thorough physical and psychological assessment is central to good-quality treatment.

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Sudden unexpected death in Epilepsy (SUDEP) is one of the leading causes of death in people with epilepsy (PWE). Awareness and taking adequate preventive measures are pivotal to reducing SUDEP. Nearly 80% of PWE live in lower-middle-income countries (LMICs) such as India where for many, epilepsy management is by psychiatrists.

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