Exploring the experience of family caregivers of children with medical complexity during COVID-19: a qualitative study.

Background And Objectives: Children with medical complexity have been disproportionately impacted by the COVID-19 pandemic and the associated changes in healthcare delivery. The primary objective of this study was to gain a thorough understanding of the lived experiences of family caregivers of children with medical complexity during the pandemic.

Methods: We conducted semi-structured interviews with family caregivers of children with medical complexity from a tertiary pediatric hospital.

Decannulation following tracheostomy in children: A systematic review of decannulation protocols.

Objective: To provide a systematic review of the existing pediatric decannulation protocols, including the role of polysomnography, and their clinical outcomes.

Methods: Five online databases were searched from database inception to May 29, 2020. Study inclusion was limited to publications that evaluated tracheostomy decannulation in children 18 years of age and younger.

Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study.

Objective: To quantify psychosocial risk in family caregivers of children with medical complexity using the Psychosocial Assessment Tool (PAT) and to investigate potential contributing sociodemographic factors.

Design: Cross-sectional study.

Setting: Family caregivers completed questionnaires during long-term ventilation and complex care clinic visits at The Hospital for Sick Children, Toronto, Ontario, Canada.