146 results match your criteria: "Center for Research on End-of-Life Care[Affiliation]"
BMJ
December 2024
Financing Alliance for Health, Kigali, Rwanda.
Prolonged grief disorder (PGD) is a distinct diagnostic entity that has recently garnered considerable attention as it describes an intense, enduring, distressing and disabling bereavement reaction experienced by a small minority of community-based mourners. In recent decades, research has exploded to address how best to treat PGD with different psychotherapeutic interventions. In this state-of-the-science review, the strength of the evidence will be discussed regarding common psychotherapeutic interventions used to treat grief.
View Article and Find Full Text PDFBJPsych Open
October 2024
Department of Radiology & Department of Medicine, Weill Cornell Medicine, New York, USA; and Center for Research on End-of-Life Care, Cornell University, USA.
Background: The grief of relatives of patients who died of COVID-19 in an intensive care unit (ICU) has exacted an enormous toll worldwide.
Aims: To determine the prevalence of probable prolonged grief disorder (PGD) at 12 months post-loss and beyond. We also sought to examine circumstances of the death during the COVID-19 pandemic that might pose a heightened risk of PGD, and the associations between probable PGD diagnosis, quality of life and social disconnection.
BMC Psychol
September 2024
Department of Medical Psychology and Medical Sociology, University of Leipzig, Leipzig, Germany.
Background: Systematic reviews and meta-analyses reveal the importance of an accepting attitude towards cancer for mental health and functional coping. The aim of this study was to examine the psychometric properties of the German translation of the Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE) questionnaire (Mack et al., 2008) and to investigate its associations with mental health, health-related quality of life (HRQoL) and related constructs.
View Article and Find Full Text PDFSupport Care Cancer
September 2024
Department of Medicine, Weill Cornell Medicine, 420 E. 70th Street, New York, NY, USA.
Purpose: To determine quality of life (QoL) domains in the months leading up to death associated with the receipt of aggressive care in the last month of life among patients with advanced cancer.
Methods: A multisite, prospective cohort study conducted from January 2010 to May 2015 of 59 patients with advanced cancer (distant metastases and/or progression of disease following at least first-line chemotherapy) and poor prognosis (≤ 6 months) followed through death. At baseline, a median of 4 months from death, the McGill Quality of Life Questionnaire measured overall QoL and four QoL domains (i.
World Psychiatry
October 2024
Department of Radiology, Weill Cornell Medicine, New York City, NY, USA.
Death Stud
June 2024
Department of English, Faculty of Languages & Literature, University of Central Punjab, Lahore, Pakistan.
Prolonged Grief Disorder (PGD) manifests as a long-lasting and incapacitating response to bereavement. The goal of this qualitative study is to understand the intricate interplay of risk and protective factors that underlie PGD by exploring into the perspectives of expert clinicians in Pakistan. Our investigation encompassed in-depth interviews with eight clinical experts comprising clinical psychologists ( = 4, possessing Higher Education Commission-recognized degrees) and psychiatrists ( = 4, certified by Pakistan Medical Commission).
View Article and Find Full Text PDFLancet Glob Health
July 2024
National Institute of Health and Medical Research (INSERM, U987), Paris-Saclay University (EDSP), Paris, France; Pain Management Department, Cochin Hospital, Paris Cité University, Paris, France.
Background: Opioid analgesics are essential for managing acute and chronic pain in diseases such as cancer. Inadequate opioid access remains a major public health concern in low-income regions including Africa. This study aimed to provide updated and comprehensive data on changes in opioid consumption, specifically in Africa.
View Article and Find Full Text PDFJ Pain Symptom Manage
August 2024
University of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA; Tómatelo a Pecho, A.C. (H.A-O., O.M., F.M.K.), Mexico City, Mexico; Sylvester Comprehensive Cancer Center, Miller School of Medicine (F.M.K.), University of Miami, Miami, Florida, USA; Leonard M. Miller School of Medicine (F.M.K.), University of Miami, Miami, Florida, USA.
Context: Inequities and gaps in palliative care access are a serious impediment to health systems especially in low- and middle-income countries and the accurate measurement of need across health conditions is a critical step to understanding and addressing the issue. Serious Health-related Suffering (SHS) is a novel methodology to measure the palliative care need and was originally developed by The Lancet Commission on Global Access to Palliative Care and Pain Relief. In 2015, the first iteration - SHS 1.
View Article and Find Full Text PDFMed Confl Surviv
June 2024
Health Research Methods, Evidence and Impact, McMaster University, Hamilton Canada.
After often gruelling journeys, some refugees arrive at secure locations with severe injury or illness. Others find themselves shortly thereafter facing a life-limiting health condition. Palliative care has been the focus of recent research, and of academic and aid sector dialogue.
View Article and Find Full Text PDFAm J Geriatr Psychiatry
May 2024
Division of Psychopathology and Clinical Intervention, Universität Zürich, Zurich, Switzerland.
J Pain Symptom Manage
May 2024
Department of Psychology (B.M., H.M.V., M.H.), Tulane University, New Orleans, LA, USA; Departments of Psychiatry and Medicine (M.H.), Tulane Cancer Center, and Freeman School of Business, Tulane University, New Orleans, LA, USA. Electronic address:
Context: Gender and personality may individually impact end-of-life care. Men often receive more aggressive treatments than women near death, and personality - particularly openness - may be associated with increased care utilization when it diverges from traditional treatment norms. However, research has not examined the interaction of these variables in a dyadic context.
View Article and Find Full Text PDFPEC Innov
December 2024
Clinical Research Division, Fred Hutchinson Cancer Center, Seattle, WA, United States of America.
Objectives: Most prior advance care planning (ACP) interventions lack integration of the social context of patients' ACP process, which patients indicate is critically important. The current study developed the Planning Advance Care Together (PACT) website to foster inclusion of loved ones in the ACP process.
Methods: To provide feedback about the PACT website, patients with advanced cancer ( = 11), their caregivers ( = 11), and experts ( = 10) participated in semi-structured interviews.
JCO Oncol Pract
January 2024
Cornell Center for Research on End-of-Life Care, Weill Cornell Medicine, New York, NY.
Purpose: Therapeutic alliances (TAs) between oncologists and patients are bonds characterized by mutual caring, trust, and respect. We here relate oncologist characteristics and behaviors to TA among Latino and non-Latino patients with advanced cancer.
Methods: Participants included non-Latino oncologists (n = 41) and their Latino (n = 67) and non-Latino White (n = 90) patients with advanced cancer who participated in Coping with Cancer III, a multisite, US-based prospective cohort study of Latino/non-Latino disparities in end-of-life cancer care, conducted 2015-2019.
BMC Palliat Care
October 2023
Department of Supportive Care, Princess Margaret Hospital, University Health Network, Toronto, ON, Canada.
Background: Universal access to palliative care remains a distant goal in many low resource settings, despite the growing evidence of its benefits. The unmet need for palliative care is evident in Africa, but great strides in palliative care development have occurred in several African countries. Located in sub-Saharan Africa, Malawi has been regarded as an exemplar of progress in this area that is achievable in a low resource region.
View Article and Find Full Text PDFJAMA Netw Open
September 2023
Division of Health Policy and Economics, Weill Cornell Medical College, New York, New York.
Cancer Med
September 2023
Memorial Sloan Kettering Cancer Center, New York, New York, USA.
Purpose: Most patients with cancer lack the prognostic understanding necessary to make informed decisions. We tested the feasibility and acceptability of the Oncolo-GIST ("Giving Information Strategically and Transparently, GIST") intervention and explored its associations with patients' improved prognostic understanding.
Methods: The Oncolo-GIST intervention distills prognostic discussions into easy-to-understand talking points.
Background: This study aimed to evaluate the gap between guidelines and local clinical practice for diagnosis and treatment of uncomplicated and severe malaria, the patient characteristics, diagnostic approach, treatment, and compliance to standard guideline recommendations.
Methods: This was a multicentre, observational study conducted between October 2020 and March 2021 in which patients of all ages with symptoms suggestive of malaria and who visited a healthcare facility were prospectively enrolled in six countries in sub-Saharan Africa (The Democratic Republic of the Congo, Mozambique, Nigeria, Rwanda, The United Republic of Tanzania, and Zambia).
Results: Of 1001 enrolled patients, 735 (73.
Z Evid Fortbild Qual Gesundhwes
August 2023
Division Manager, Noncommunicable Diseases, Rwanda Biomedical Centre, Kigali, Rwanda.
After the devastating damage inflicted by the 1994 Genocide against the Tutsi, Rwanda made great strides in reconstructing its healthcare system from scratch. Although cancer mortality rates continue to rise, there is still a dearth of qualified healthcare workers for advance care planning (ACP) for terminally ill patients. I will draw on lessons learned through the literature search for the initiation of ACP and reflect on their adaptation to the existing policies, healthcare systems, and workforce in Rwanda.
View Article and Find Full Text PDFEcancermedicalscience
May 2023
Rwanda Cancer Relief, KK 739 Street, Kicukiro, PO Box 4016, Kigali, Rwanda.
The ecancer Choosing Wisely conference was held for the second time in Africa in Dar es Salaam, Tanzania, from the 9th to 10th of February 2023. ecancer in collaboration with the Tanzania Oncology Society organised this conference which was attended by more than 150 local and international delegates. During the 2 days of the conference, more than ten speakers from different specialties in the field of oncology gave insights into Choosing Wisely in oncology.
View Article and Find Full Text PDFJ Clin Oncol
October 2023
Department of Medicine and Herbert Irving Comprehensive Cancer Center, Vagelos College of Physicians and Surgeons, Columbia University, New York, NY.
Ecancermedicalscience
March 2023
Einstein-Rwanda Research and Capacity Building Program, Research for Development (RD Rwanda) and Rwanda Military Hospital, Kigali, Rwanda.
The Choosing Wisely campaign was formally launched in 2012 and a decade later, the inaugural Choosing Wisely Africa conference was held in Dakar, Senegal on 16 December 2022 supported by ecancer. Academic partners included Ministere de la Sante et de I'Action Sociale, Senegalese Association of Palliative Care, Federation Internationale des Soins Palliatifs, Universite Cheikh Anta diop de Dakar, Societe Senegalaise de Cancerologie and King's College London. There were around 70 delegates attending in person mostly from Senegal and a further 30 joining virtually.
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