6 results match your criteria: "60081Perth Children's Hospital[Affiliation]"
'Torn in two': Experiences of Mothers Who Are Pregnant when Their Child Is Diagnosed With Cancer.
Qual Health Res
October 2022
117610Telethon Kids Institute, Nedlands, WA, Australia.
Article Synopsis
- Mothers of children with cancer often feel very stressed and unhealthy, especially if they're pregnant or just had a baby.
- A study talked to 13 mothers from Australia who were in this situation to understand their experiences better.
- The researchers found that these moms face challenges like balancing their family's needs, worrying about their own health, and feeling guilty about not being able to do everything perfectly, showing the need for better support for them.
Childhood Systemic Lupus Erythematosus: Presentation, management and long-term outcomes in an Australian cohort.
Lupus
February 2022
Department of Rheumatology, 60081Perth Children's Hospital, Perth, WA, Australia.
Objectives: Systemic Lupus Erythematosus (SLE) is a serious autoimmune disease often resulting in major end-organ damage and increased mortality. Currently, no data exists focussing on the presentation, long-term management and progression of SLE in the Australian paediatric population. We conducted the first Australian longitudinal review of childhood SLE, focussing on response to treatment and outcomes.
View Article and Find Full Text PDFEvidence-Based Recommendations for Nurse Monitoring and Management of Immunotherapy-Induced Cytokine Release Syndrome: A Systematic Review from the Children's Oncology Group.
J Pediatr Oncol Nurs
October 2021
16121University of Michigan School of Nursing, Ann Arbor, MI, USA.
Article Synopsis
- Children with B-precursor acute lymphoblastic leukemia and B-cell lymphoma, especially those with relapsed cases, are increasingly participating in clinical trials for immunotherapies.
- These therapies carry a high risk of cytokine release syndrome (CRS), yet there are no standardized guidelines for nurses to monitor and handle CRS effectively.
- The review identified six studies and one guideline, leading to six nursing practice recommendations aimed at improving monitoring and management of CRS, with varying levels of evidence strength.
Description of Total Population Hospital Admissions for Treacher Collins Syndrome in Australia.
Cleft Palate Craniofac J
September 2022
117610Telethon Kids Institute, The University of Western Australia, Nedlands, WA, Australia.
Objective: To describe patterns and demographic characteristics of total-population hospital admissions with a diagnosis of Treacher Collins syndrome (TCS) in Australia.
Data Source: Population summary data for inpatient hospitals admissions (public and private) with a principal diagnosis of TCS (ICD10-AM-Q87.04) were obtained from the Australian Institute of Health and Welfare National Hospital Morbidity Database for a 11-year period (2002-2013).
A Clinical Report Utilizing the VITOM 3D Microvideoscope for Cleft Palate Repair.
Cleft Palate Craniofac J
October 2022
60081Perth Children's Hospital, Nedlands, Australia.
Cleft palate surgery has traditionally presented numerous problems for cleft surgeons including ergonomics, limited visual fields restricting the opportunity for demonstration and teaching. Additionally, the move toward online teaching means the ability to record or livestream video is paramount. The following report of eight cleft palate repairs highlights the novel use of the Vitom 3D microvideoscope as an innovative technique for cleft palate repair with our early experience demonstrating significant ergonomic and teaching benefits.
View Article and Find Full Text PDFPatient experience surveys for children's community health services: A scoping review.
J Child Health Care
March 2022
60081Perth Children's Hospital, Nedlands, Australia.
Patient experience surveys have a user focus and measure the quality of person-centered health care for hospital inpatients and consumers of community health services, providing a governance process to evaluate the quality of care and to action improvement. Experience of care has been described as effective communication, respect and dignity, and emotional support. Measurement criteria for these domains are not standardized, leading to inconsistent reporting of patient experience.
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