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International consensus on sleep problems in pediatric palliative care: Paving the way.
Sleep Med
July 2024
Pediatric Palliative Care, Pain Service, Department of Women's and Children's Health, University Hospital of Padua, Padua, Italy.
Objective: Sleep problems constitute a common and heterogeneous complaint in pediatric palliative care (PPC), where they often contribute to disease morbidity and cause additional distress to children and adolescents and their families already facing the burden of life-threatening and life-limiting conditions. Despite the significant impact of sleep problems, clinical evidence is lacking. The application of general pediatric sleep recommendations appears insufficient to address the unique challenges of the PPC dimension in terms of disease variability, duration, comorbidities, complexity of needs, and particular features of sleep problems related to hospice care.
View Article and Find Full Text PDFSupporting the Family After the Death of a Child or Adolescent.
Pediatrics
December 2023
Department of Pediatrics, Children's Mercy Kansas City, University of Missouri, Kansas City, School of Medicine, Kansas City, Missouri.
Whether death occurs in the context of a chronic illness or as the sudden loss of a previously healthy infant, child, or adolescent, the death of a child is a highly stressful and traumatic event. Psychosocial support for families after the death of a child embodies core medical values of professional fidelity, compassion, respect for human dignity, and promotion of the best interests of a grieving family. The pediatrician has an important role in supporting the family unit after the death of a child through a family-centered, culturally humble, trauma-informed approach.
View Article and Find Full Text PDFPatterns of Electrocardiographic Abnormalities in Children with Hypertrophic Cardiomyopathy.
Pediatr Cardiol
December 2024
Oregon Health and Science University, 707 SW Gaines Street, Portland, OR, 97239, USA.
Hypertrophic cardiomyopathy (HCM), a common cardiomyopathy in children, is an important cause of morbidity and mortality. Early recognition and appropriate management are important. An electrocardiogram (ECG) is often used as a screening tool in children to detect heart disease.
View Article and Find Full Text PDFSudden cardiac death in the young: A consensus statement on recommended practices for cardiac examination by pathologists from the Society for Cardiovascular Pathology.
Cardiovasc Pathol
February 2023
University of Ottawa, Ottawa, Ontario, Canada.
Article Synopsis
- * Investigations of SCD in people under 40 are crucial, involving medical examiner/coroner reviews, autopsies, and toxicological studies, but often lack consistent guidelines due to resource limitations.
- * Establishing uniform guidelines for examining SCD cases could lead to lifesaving interventions for family members and help underfunded medical examiner offices justify the need for specialized testing.
Sudden unexpected infant death rates and risk factors for unsafe sleep practices.
World J Pediatr
March 2022
Department of Epidemiology, College of Public Health, University of Nebraska Medical Center, 984395 Nebraska Medical Center, Omaha, NE, 68198-4395, USA.
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