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A Community-Engaged, Mixed-Methods Approach to Prioritizing Needs in a Statewide Assessment of Community Cancer Needs.
Prev Chronic Dis
December 2024
Community Impact Office, Markey Cancer Center, University of Kentucky, Lexington.
Introduction: Kentucky has the highest all-site cancer incidence and death rate in the US. In 2021, the University of Kentucky Markey Cancer Center convened a steering committee to conduct a statewide community cancer needs assessment (CNA). The goal of the final CNA phase was to gather community input on prioritizing Kentucky's cancer-related needs and ways to address them.
View Article and Find Full Text PDFAutism at 30: Conceptualizations for adult research and clinical practice.
Am Psychol
December 2024
Department of Psychiatry, University of California, Los Angeles.
Autism spectrum disorder is one of the most common neurodevelopmental conditions diagnosed in children. Most autism research, intervention, and policy focus exclusively on this condition in childhood, but autism often persists across the life course. This narrative review leverages data from 115 participants first diagnosed with autism between ages 2 and 3 years and subsequently followed for 3 decades ( = 30.
View Article and Find Full Text PDFDifferent ways to reach the same goal: Are the analgesic effects of different types of tactile stimuli similar?
Eur J Pain
January 2025
Physical Therapy Department, Faculty of Social Welfare & Health Sciences, University of Haifa, Haifa, Israel.
Background: Tactile-induced analgesia (TIA) is a phenomenon in which different types of tactile stimulation alleviate pain via different mechanisms including empathy. As TIA plays an essential role in therapeutic situations and clinical conditions, it is crucial to determine whether specific tactile stimulations confer distinct benefits.
Methods: Fifty-two subjects (31 females; 21-47 years) were exposed to four distinct experimental conditions involving three types of touch provided within a simulated supportive therapeutic setting.
Patient-Reported Experience Measurements From Individuals With Inherited Retinal Disorders Involved in Observational Research.
Transl Vis Sci Technol
December 2024
Moorfields Eye Hospital, London, UK.
Purpose: Inherited retinal disorders (IRD) are a complex group of conditions. By developing the first patient-reported experience measurement (PREM) questionnaire tailored for individuals with IRD participating in natural history studies, we gathered information on individuals' views of their experience while they are involved in research.
Methods: Adults with IRD who (i) were enrolled in a natural history study taking place at Moorfields Eye Hospital (London, UK), (ii) had attended at least two study visits, (iii) the most recent one being less than two weeks before the questionnaire, and (iv) who were not involved in interventional research, were considered for participation.
Using normalisation process theory to evaluate the implementation of a digital health intervention in community and secondary care long COVID clinics.
BMJ Open
November 2024
Research Department of Primary Care and Population Health, University College London, London, UK.
Article Synopsis
- The study explores the implementation of a digital health intervention (DHI) designed for supporting self-management among long COVID patients, involving a patient app and a clinician dashboard.
- Using qualitative analysis and Normalisation Process Theory, researchers found that the DHI was adaptable to various healthcare settings, enhancing collaboration among healthcare professionals while acknowledging the necessity for in-person care.
- The findings suggest that DHIs can potentially transform traditional healthcare engagement patterns, emphasizing the importance of organizational context and individual experiences in successful implementation.
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