AI Article Synopsis

  • The study examines how various recruitment strategies and patient cooperation levels affected the analysis of a natural history study focused on congenital heart defects.
  • It outlines the protocols used for data collection and examination, as well as the statistical methods employed for analyzing the results.
  • Findings include participation statistics, mortality rates, and comparisons between patient questionnaire responses and physician histories, along with a discussion of their implications.

Article Abstract

Results of the location and recruitment efforts and comparisons of responses from patients who cooperated at different levels in the Second Natural History Study of Congenital Heart Defects are included because they influenced the choice of analytic methods and are essential to the generalizability of the results to the entire study cohort. Included are examination and data collection protocols (e.g., protocol definitions, test procedures, and data editing), statistical methods (e.g., box plots, survival curves, multivariable models, and rate adjustment), participation results (e.g., proportional odds analysis, mortality, location, recruitment, and full participants, including comparison of questionnaire responses and comparison of questionnaire response and physician history), and a discussion.

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