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Proceedings of the 2024 Santa Fe Bone Symposium: Update on the Management of Osteoporosis and Rare Bone Diseases.
J Clin Densitom
December 2024
Hospital for Special Surgery, New York, NY, USA.
The 24 Annual Santa Fe Bone Symposium (SFBS) was held in Santa Fe, New Mexico, USA, on August 2-3, 2024. This was a "hybrid" meeting, with in-person and real-time remote participants representing a broad range of geographical locations and medical disciplines. The focus was on new developments in the care of patients with osteoporosis, other metabolic bone diseases, and inherited skeletal disorders.
View Article and Find Full Text PDFNurse-guided Mobile Health Care Program to Reduce Emotional Distress Experienced by Parents of Infants Prenatally Diagnosed with Critical Congenital Heart Disease: A Pilot Study.
Prog Pediatr Cardiol
March 2024
GetWell, 7700 Old Georgetown Rd., 4th Floor, Bethesda, MD 20814.
Background: Following prenatal diagnosis of critical congenital heart disease (CCHD), parents encounter emotional distress while facing caregiving challenges. Supportive psycho-educational interventions using mobile health (mHealth) can make care more accessible.
Objectives: We tested a novel nurse-guided mHealth care program, Preparing Heart and Mind (PHM), with the objectives of examining feasibility and estimating the effect of the intervention on parents' emotional distress.
Low-dose immune tolerance induction therapy in severe hemophilia a children in China: Starting earlier resulted in better inhibitor eradication outcomes.
Thromb Res
May 2023
Hemophilia Comprehensive Care Center, Hematology Center, Beijing Key Laboratory of Pediatric Hematology-Oncology, National Key Discipline of Pediatrics (Capital Medical University), Key Laboratory of Major Diseases in Children, Ministry of Education, Beijing Children's Hospital, Capital Medical University, National Center for Children's Health, 100045, China. Electronic address:
Background: Shorter interval-time from inhibitor detection to starting immune tolerance induction (ITI) might predict better ITI outcomes for severe Hemophilia A (SHA) patients with high-risk-inhibitors. However, the prediction-impact of interval-time for these patients on low-dose ITI strategy remained unclear.
Objectives: To explore the relationship between interval-time and low-dose ITI outcomes in Chinese SHA children with high-risk-inhibitors.
Science surrounding the safe use of bioactive ingredients in infant formula: federal comment.
Pediatr Res
August 2023
Center for Food Safety and Applied Nutrition, College Park, MD, USA.
Less than a quarter of U.S. infants meet the federal recommendation for exclusively breastfeeding to 6 months of age, necessitating access to safe and effective infant formula.
View Article and Find Full Text PDFReflections on experiential training in meaning-centered psychotherapy: How MCP ended up facilitating professional wellbeing.
Palliat Support Care
February 2023
Office of the Clinical Director, National Institute of Mental Health, Bethesda, MD.
Objective: Meaning-centered psychotherapy (MCP) principles may provide a framework for engaging healthcare professionals in meaning-centered exploration as a novel approach to prevent burnout and enhance wellbeing in healthcare professionals through heightening personal meaning. This case study aimed to teach MCP to masters-trained social workers for use with medical patients. While the primary aim was to teach MCP to masters-trained social workers, this proof-of-concept project and this paper focus on a secondary aim of enhancing meaning and connection in the virtual workplace.
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