The definition and clarification of the role of professional nurses on the interdisciplinary team was the focus of this paper. Professional services that other team members, administrators, individuals with developmental disabilities, and their families may expect from registered nurses were outlined. The AAMR Nursing Division Position Statement was presented in order to inform the public and provide a framework of practice for professional nurse specialists in the field of developmental disabilities.
Download full-text PDF |
Source |
|---|
Publication Analysis
Top Keywords
Similar Publications
Enhancing Medical Education for the Care of Patients with Intellectual and Developmental Disabilities: The Role of Specialized Training and Early Exposure.
South Med J
February 2025
the Division of General Internal Medicine, University of Florida College of Medicine-Jacksonville, Jacksonville.
Pedals possible: a pilot study of adaptive cycling as a school-based rehabilitation intervention for students with disabilities.
Front Pediatr
January 2025
Department of Rehabilitation Science, College of Health Professions, Medical University of South Carolina, Charleston, SC, United States.
Introduction: Pediatric therapists in school-based practice can incorporate exercise promotion through adaptive cycling for children with disabilities who experience high levels of sedentary behavior and low levels of moderate to vigorous activity.
Methods: The impacts of an adaptive cycling pilot program for children with disabilities were investigated through a community-based participatory study. During an eight-week intervention, students had a goal of riding adaptive cycles three times a week for twenty minutes.
Systematic Literature Review on Public Health Impacts of Persistent Tic Disorders: Health Care Needs and Health Care Use.
Psychiatr Clin North Am
March 2025
Applied Research and Evaluation Team, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention (CDC), 4770 Buford Hwy S106-4, Atlanta, GA 30341, USA.
This study describes our systematic literature review documenting outcomes associated with persistent tic disorders (PTDs) and summarizes 15 articles comparing health care use between individuals with PTDs and a comparison group without PTDs. Only 2 studies included adults and only one study stratified findings by sociodemographic characteristics, precluding conclusions on health care disparities. Most children with PTDs had access to routine care, similar to children without PTDs, but needed and used more specialty health care, including mental health services, compared to children without PTDs.
View Article and Find Full Text PDFNovel De Novo Intronic Variant of SYNGAP1 Associated With the Neurodevelopmental Disorders.
Mol Genet Genomic Med
February 2025
Department of Chemistry and Molecular Biology, Gothenburg University, Gothenburg, Sweden.
Background: SYNGAP1 encodes a Ras/Rap GTPase-activating protein that is predominantly expressed in the brain with the functional roles in regulating synaptic plasticity, spine morphogenesis, and cognition function. Pathogenic variants in SYNGAP1 have been associated with a spectrum of neurodevelopmental disorders characterized by developmental delays, intellectual disabilities, epilepsy, hypotonia, and the features of autism spectrum disorder. The aim of this study was to identify a novel SYNGAP1 gene variant linked to neurodevelopmental disorders and to evaluate the pathogenicity of the detected variant.
View Article and Find Full Text PDFLoneliness among Adults Aging with Intellectual and Developmental Disabilities: The Importance of Living Situation.
Gerontologist
January 2025
Department of Gerontology, Donna M. and Robert J. Manning College of Nursing and Health Sciences, University of Massachusetts Boston, Boston, Massachusetts, USA.
Background And Objectives: Loneliness is a serious public health concern among the aging population. Not only is loneliness an unpleasant emotional experience, it is also associated with worse health, well-being, and even mortality. This is a particularly important issue among the population aging with intellectual and developmental disabilities, who are more likely to experience loneliness across the life course, and who - particularly if living in an intermediate care facility (ICF) or nursing facility - may lack social connections.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!