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Relationships that promote and threaten family hope during pregnancy and care for high-risk newborns.

Rev Gaucha Enferm

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Universidade Federal de São João del-Rei (UFSJ), Faculdade de Enfermagem, Programa de Pós-Graduação em Enfermagem. Divinópolis, Minas Gerais, Brasil.

Objective: To understand the relationships that promote and threaten family hope during pregnancy and in the care of high-risk newborns.

Method: Qualitative research, guided by the theoretical framework of Understanding the Complex Nature of Hope, carried out between December 2021 and March 2022, with 28 members of 14 families attended at a multidisciplinary outpatient clinic for at-risk newborns in Minas Gerais, Brazil. Data obtained from interviews in thematic oral history allowed the construction of narratives, genograms and ecomaps, which were subjected to deductive thematic analysis procedures.

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The involvement of people with lived experience (patients) in medical education offers a unique opportunity for students and residents to access personal and collective knowledge about the lived experience of health, ill health, and medical care. Involvement also has the potential to elevate the role of people with lived experience and their knowledge within medicine by providing a model for meaningful collaboration and partnership. However, involvement has been critiqued by critical disability scholars for its potential to harm without leading to meaningful change in professional knowledge or practice.

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'See Me as a Person': A Qualitative Study of Long-Term Care Recipients Perceptions of High-Quality Care.

J Clin Nurs

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Centre for Care Research, Department of Health Science in Gjøvik, Faculty of Medicine and Health Science, NTNU-Norwegian University of Science and Technology, Gjøvik, Norway.

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Parental relationship dissolution is among the most prevalent life crises for youths and is associated with both short- and long-term intra- and interpersonal struggles. Extant support programs tend to be in-person and in a group format. However, the structure and personnel needed for these programs make them costly to implement, less accessible, and difficult to scale.

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