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Nonepileptic seizures in the pediatric population: A qualitative study of patient and family experiences.
Epilepsy Behav
June 2016
Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH, UK; UCL Institute of Child Health, 30 Guildford St, University College London, London WC1N 1EH, UK.
Objective: The objective of this study was to characterize the experience of nonepileptic seizures (NES) in young people (0-19years) and their families, referred to a UK specialist (tertiary) pediatric hospital. The topics investigated include: accessing healthcare, how the diagnosis was first explained, impact on home life and school, coping strategies, and ideas about naming and causes.
Methods: Ten young people with NES and 29 family members took part in focus groups and telephone interviews.
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