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Learning-by-doing: the importance of experiential knowledge sharing for meeting the information needs of people with colorectal cancer in Germany-a qualitative study.
BMJ Open
February 2021
Institute of Social Medicine and Epidemiology, Brandenburg Medical School Theodor Fontane, Brandenburg/Havel, Germany
Objective: The aim of this article is to understand how, when and why the topics of information and information needs arise when people diagnosed with colorectal cancer (CRC) narrate their illness experiences.
Methods: Guided by principles of grounded theory, a qualitative interview study was conducted that collected a wide variety of illness experiences with CRC in Germany using maximum variation sampling. Sampling criteria included place of residence, age at interview, age at diagnosis, treatment, disease course and sociodemographic factors such as varying family backgrounds and professions.
[A discussion group for parents of children with a digestive stoma].
Soins Pediatr Pueric
December 2020
Service de chirurgie viscérale pédiatrique et néonatale, Hôpital Armand-Trousseau, AP-HP, 26 avenue du Docteur-Arnold-Netter, 75012 Paris, France. Electronic address:
When a pathology is diagnosed at the birth of a child, the parents are confronted with an overwhelming life ordeal they have to face. A discussion group for these mothers and fathers of newborn babies who have needed a digestive stoma allows them to discuss their daily lives and share common concerns, to be reassured by the difficulties encountered, to gain confidence in the care provided and to project themselves into the future more serenely.
View Article and Find Full Text PDF[Intestinal stomata].
Chirurg
March 2020
Klinik und Poliklinik für Allgemein‑, Viszeral‑, Thorax- und Gefäßchirurgie, Universitätsklinikum Bonn, Venusberg-Campus 1, 53127, Bonn, Deutschland.
An intestinal stoma (greek στὁμα, stoma: mouth, opening) is a surgically created opening of a gut section through the abdominal wall, which serves as an artificial intestinal exit for excretion of feces (synonym preternatural anus). A stoma of the gastrointestinal (GI) tract is often surgically created at the distal small intestine (ileostomy) and the colon (colostomy). Temporary or permanent deviation of fecal excretion may be required to treat various pathological conditions (e.
View Article and Find Full Text PDFLong-term Quality of Life of Patients With Permanent End Ileostomy: Results of a Nationwide Cross-Sectional Survey.
Dis Colon Rectum
January 2017
1 Department of General, Visceral, Transplantation, Vascular and Thoracic Surgery, Hospital of the University of Munich, Munich, Germany 2 Department of Medical Informatics, Biometry and Epidemiology, University of Munich, Munich, Germany 3 Deutsche ILCO e.V., Bonn, Germany 4 Department of General, Visceral and Vascular Surgery, University of Berlin-Charité, Campus Benjamin Franklin, Berlin, Germany.
Background: Patients with permanent end ileostomy are at high risk for detrimental stomal effects on their quality of life. However, little is known about the long-term quality of life of these patients.
Objective: The purpose of this study was to assess long-term quality of life in patients with permanent end ileostomy.
Continent catheterizable conduit for urinary diversion in children: Applicability and acceptability.
Afr J Paediatr Surg
November 2016
Department of Pediatric Surgery, Indira Gandhi Institute of Child Health, Bengaluru, Karnataka, India.
Background: Continent catheterizable conduit (CCC) has made clean intermittent catheterization (CIC) painless and easy. It is applicable in diverse clinical conditions. Nonetheless, convincing the parents for the need of conduit procedure is still difficult.
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