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Quality of life in people with syndromic heritable thoracic aortic disease and their relatives: a qualitative interview based study.
Orphanet J Rare Dis
January 2025
Department of Social Work, Child Welfare and Social Policy, Faculty of Social Science, Oslo Metropolitan University, Oslo, Norway.
Introduction: The purpose of this study was to investigate perceptions and opinions on what constitutes determinants for quality of life (QoL) in individuals with syndromic Heritable Aortic Disease (sHTAD), utilizing a qualitative study approach. Further to discuss clinical implications and direction for research.
Method: A qualitative focus group interview study was conducted of 47 adults (Marfan syndrome (MFS) = 14, Loeys-Dietz syndrome (LDS) = 11, vascular Ehlers Danlos syndrome (EDS) = 11, relatives = 11).
The impact of radiographic examination timing and gag reflex on dental fear and cooperation in children: a comparative clinical study.
Eur Arch Paediatr Dent
January 2025
Department of Paediatric Dentistry, School of Dentistry, Aristotle University of Thessaloniki, Thessaloniki, Greece.
Purpose: Identifying factors that disrupt cooperation during radiographic examination, such as dental fear and the gag reflex, is crucial for achieving optimal radiographic outcomes. The aim of the present study is to evaluate the levels of dental fear and cooperation amongst children aged 4-9 years undergoing intraoral radiographic examination at different stages of dental treatment. It also investigates the impact of the gag reflex on children's behaviour during intraoral radiographic examination.
View Article and Find Full Text PDFLiberalism and mitochondrial replacement technique.
J Med Ethics
January 2025
Philosophy, University of Waterloo, Waterloo, Ontario, Canada
How should defenders of liberalism think about access to reproductive technologies? Mitochondrial replacement technique (MRT) enables women with pathogenic variations of mitochondrial disease to have children without the fear of transmission. This technology can also allow lesbians, or partners with female-assigned physiology (PFP), to have genetically related offspring. Cavaliere and Palacios-Gonzalez argue that lesbians should be able to access MRT on autonomy grounds.
View Article and Find Full Text PDFChild sexual grooming: Listening to victims in Jordan.
Child Abuse Negl
January 2025
Department Social Wellbeing, United Arab Emirates University, Al Ain, United Arab Emirates; COMPRES research entity, North-West University, Gauteng, South Africa. Electronic address:
Background: Little is known about sexual grooming among children in Arab-Islamic countries. Accessing victims of child sexual abuse in such a context is challenging; however, qualitative secondary analysis provides a framework for exploring this phenomenon.
Objective: This study employed qualitative secondary analysis to identify sexual grooming behavior and strategies based on the statements made by Jordanian children.
Impact of Noise on Medical Anxiety in Hospitalized Children with Pneumonia: A Retrospective Study.
Noise Health
January 2025
Department of Pediatrics, Huoqiu First People's Hospital, Lu'an, Anhui 237400, China.
Purpose: Noise levels may have an impact on the level of fear and anxiety in hospitalized children, which, in turn, may affect the effectiveness of treatment. This retrospective study aimed to investigate the impact of noise levels on medical anxiety in hospitalized children with pneumonia.
Methods: Children hospitalized for pneumonia in our hospital from January 2020 to December 2023 were consecutively enrolled in this study.
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