It is stressed that the best possible medical care is the basic need and an absolute pre-requisite for the total care of a family with a chronicall ill, handicapped or dying child. However, this is not enough. The family will need something more than just strict medical care. This paper is concerned with the "something more," stressing the family's need for measures helping them to work with the crisis reaction, elicited by the information they have received about the child's diagnosis and prognosis. The methods of bringing the family help is discussed in relation to the time-schedule of the disorder. The importance of how the first information is given is particularly stressed.
Download full-text PDF |
Source |
---|---|
http://dx.doi.org/10.1016/s0387-7604(80)80033-7 | DOI Listing |
Int J Environ Res Public Health
December 2024
School of Sport, Exercise and Health Sciences, Loughborough University, Loughborough LE11 3TU, UK.
The objective of this study was to synthesise evidence assessing the effectiveness of workplace-based interventions that promote self-management of multiple long-term conditions or disabilities, e.g., type I and II diabetes, asthma, musculoskeletal injury/disorder, cancer, and mental ill-health.
View Article and Find Full Text PDFHealth Expect
December 2024
Department of Nursing, School of Health and Biomedical Sciences, RMIT University, Bundoora, Victoria, Australia.
Background: Most people with mental ill health want to be involved in decision-making about their care, many mental health professionals now recognise the importance of this (at least in-principle) and the Convention on the Rights of Persons with Disabilities enshrines the ethical imperative to support people in making their own treatment decisions. Nonetheless, there are widespread reports of people with mental ill health being excluded from decision-making about their treatment in practice.
Objectives: We conducted a systematic review of quantitative, qualitative and mixed method research on interventions to improve opportunities for the involvement of mental healthcare service users in treatment planning.
J Intellect Disabil Res
December 2024
Department of Rehabilitation, The Yamabiko Medical Welfare Center, Kagoshima, Japan.
Background: Persons with severe motor and intellectual disabilities (SMID) have difficulty using general nutritional assessments in the elderly and other populations because of their physical characteristics. The purpose of this study was to investigate the clinical utility of body composition, which has been suggested to be related to biochemical tests in persons with SMID.
Methods: We calculated cutoff values of body composition predicting malnutrition and compared the usage of peripheral parenteral nutrition for the two groups divided by each body composition cutoff value.
BMC Palliat Care
December 2024
Te Kura Tapuhi/The School of Nursing, Waipapa Taumata Rau/The University of Auckland, 85 Park Road, Auckland, Aotearoa New Zealand.
Background: People experiencing homelessness access specialist palliative care late in their illness trajectory, if at all. There is also little evidence they receive generalist palliative care or are given opportunities to engage in Advance Care Planning. This qualitative study describes the central role of key workers in supporting access to healthcare in homeless communities and identifies implications for improving palliative care provision.
View Article and Find Full Text PDFThe hospital gown is a particularly charged article of clothing. For the chronically ill and disabled, the ritual of donning the gown signals a change of identity from "person" to "patient." This essay chronicles the metamorphosis of a standard hospital gown into a work of wearable art that showcases the glittering pregnant body.
View Article and Find Full Text PDFEnter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!