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Understanding the Support Needs of People with Autosomal Dominant Polycystic Kidney Disease: A Qualitative Phenomenological Descriptive Study.
Nephron
January 2025
Department of Renal Medicine, Aarhus University Hospital, Aarhus, Denmark.
Introduction: Autosomal dominant polycystic kidney disease (ADPKD) is a prevalent hereditary kidney disease and the fourth most common cause of kidney failure. Patients may be aware of their condition from an early age or discover it unexpectedly, with varying levels of familial knowledge about the disease. This chronic condition presents significant challenges for healthcare professionals.
View Article and Find Full Text PDFExperience of home monitoring of children with complex CHD during the COVID-19 pandemic: lessons learnt.
Cardiol Young
January 2025
Paediatric Cardiology Department, Royal Belfast Hospital for Sick Children, Belfast, Northern Ireland.
Objective: The COVID-19 pandemic presented unique challenges to global healthcare. Face-to-face outpatient care was dramatically reduced. This study implemented a remote consultation service via a mobile app (Pexip) to monitor patients with major CHD.
View Article and Find Full Text PDFTracking Outcomes Post Intensive Care: Findings of a longitudinal observational study.
Aust Crit Care
January 2025
Critical Care Research Group, Prince Charles Hospital, Brisbane, Queensland, Australia; School of Dentistry, University of Queensland, Brisbane, Queensland, Australia.
Background: Many intensive care unit (ICU) survivors experience new or worsening impairments, termed post-intensive care syndrome. Substantial investment has been made in identifying patients at risk and developing interventions, but evidence remains equivocal. A more nuanced understanding of risk and outcomes is therefore warranted.
View Article and Find Full Text PDFSisonke Ntwana: Describing the mechanisms of change of an arts-based intervention for pregnant and parenting adolescents experiencing violence and poor mental health in South Africa.
Child Abuse Negl
January 2025
School of Public Health, University of the Witwatersrand, Johannesburg, South Africa; Gillings School of Global Public Health, University North Carolina, USA.
Background: In South Africa, one in five adolescents experience pregnancy and face heightened rates of interpersonal violence and mental health challenges. Yet, few interventions are tailored to them.
Methods: 28 pregnant adolescents reporting past year intimate partner violence and/or non-partner rape were purposively recruited in antenatal clinics in Johannesburg to attend a 6-session arts-based intervention, delivered by 4 graduate art therapy students alongside clinical supervision.
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