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Persistent Menorrhagia and Hemorrhagic Ovarian Cyst in a Patient With Bernard-Soulier Syndrome: A Case Report.
Cureus
December 2024
Hematology, Dubai Hospital, Dubai Health, Dubai, ARE.
Bernard-Soulier syndrome (BSS) is a rare qualitative condition of platelets wherein deficiency of platelet surface glycoproteins (GP) Ib, IX, and V forms the Ib-IX-V complex, leading to impaired hemostasis. Although it commonly presents as prolonged bleeding in general, women in the reproductive phase report additional complications during menstruation, pregnancy, and childbirth. In women of reproductive age, menorrhagia is a frequent complaint.
View Article and Find Full Text PDFCatamenial Pneumothorax-Still an Unveiled Disease.
Medicina (Kaunas)
December 2024
Department of Pneumonology, Medical University of Gdańsk, 80-210 Gdańsk, Poland.
This review presents current opinions on an uncommon condition called catamenial pneumothorax (CP), which is usually associated with thoracic endometriosis syndrome (TES). TES is characterized by the presence of endometriotic lesions in pleura and lung parenchyma and presents with various clinical signs and symptoms, including catamenial pneumothorax. Their diagnosis is often delayed.
View Article and Find Full Text PDFCross-Cultural Translation of the Adolescent Menstrual Bleeding Questionnaire (AMBQ).
Haemophilia
December 2024
Division of Hematology/Oncology IWK Health, Department of Pediatrics Dalhousie University, Halifax, Nova Scotia, Canada.
Aim: Heavy menstrual bleeding (HMB) affects up to 37% of adolescents. Given the paucity of available tools to assess health-related quality of life (HRQoL) in adolescents with HMB, we developed the adolescent menstrual bleeding questionnaire (aMBQ), a valid and reliable measure of bleeding-related quality of life. The aim of this study was cross-cultural translation and adaptation of the English aMBQ into French to ensure accessibility for more Canadian adolescents who menstruate.
View Article and Find Full Text PDFHeavy menstrual bleeding clinics for adolescents.
Hematology Am Soc Hematol Educ Program
December 2024
Stead Family Department of Pediatrics, Carver College of Medicine, University of Iowa, Iowa City, IA.
Heavy menstrual bleeding (HMB) is a common symptom in adolescence, often leading to significant disruptions in daily life, such as school absences, shame caused by the stigma surrounding menstruation, and symptoms from iron deficiency. Further, HMB may be the first and/or only sign of an underlying bleeding disorder. Navigating the symptoms, effects, and treatments of HMB during adolescence requires a collaborative approach between the patient, caregivers, and healthcare providers.
View Article and Find Full Text PDFA core outcome set for prophylaxis and perioperative treatment of von Willebrand disease: The coreVWD initiative.
Haemophilia
November 2024
Department of Medicine, Queen's University, Kingston, Canada.
Introduction: Treatment options are expanding for von Willebrand disease (VWD). A core outcome set (COS)-a minimum set of agreed-upon outcomes to be used in every clinical trial for a given condition-provides guidance on which outcomes are most important to measure to ensure necessary data is collected for a variety of stakeholders and enable comparison across products and trials.
Aim: coreVWD aimed to develop a COS for trials for prophylaxis and perioperative treatments for VWD.
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