Aims: Delirium is common among adults recovering from cardiac surgery in the intensive care unit (ICU), prompting increased family involvement in their care. This study aimed to describe ICU nurses' perceptions of factors that support or impede family involvement in preventing, assessing, and managing delirium in the postoperative period following cardiac surgery.
Methods: A convenience sample of 18 nurses with a mean age 36 years (24-49), 89 % female) was recruited from two university-affiliated ICUs in Canada. After providing written informed consent, participants engaged in a semi-structured individual interview. Descriptive thematic analysis was performed using an established method.
Findings: The analysis identified six key themes: 1) Choosing the right time to involve the family, 2) The importance of sharing information, 3) Influence of family characteristics, 4) Influence of organizational characteristics, 5) Family input helps detect delirium, and 6) Families can take concrete actions when delirium occurs. Notably, while information sharing during delirium episodes was highly valued, discussions on delirium prevention were absent among all nurse participants.
Conclusions: Overall, ICU nurses perceive family involvement in delirium care as beneficial, depending on factors such as patient condition, nurse attitudes and preferences, family characteristics, and organizational support. This qualitative study provides valuable insights on nurses' perceptions regarding family involvement in ICU settings.
Implications For Clinical Practice: ICU nurses, healthcare administrators and educators can use these findings to support family involvement in ICU delirium care after cardiac surgery. Overcoming barriers, particularly around delirium prevention, requires further investigation into nurses' education, resource allocation, and organizational support.
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http://dx.doi.org/10.1016/j.iccn.2025.104001 | DOI Listing |
J Cell Mol Med
March 2025
Center for Reproductive Medicine, Zhongnan Hospital of Wuhan University, Wuhan, Hubei, People's Republic of China.
Joubert syndrome (JS) is a rare neurodevelopmental disorder associated with mutations in genes involved in ciliary function. Germline variants in CPLANE1 have been implicated in JS. In this study, we investigated a family with three adverse pregnancies characterised by fetal malformations consistent with JS.
View Article and Find Full Text PDFBMJ Open
March 2025
Genome Institute of Singapore (GIS), Agency for Science, Technology and Research (A*STAR), Singapore
Objectives: To explore husbands' views on breast cancer screening, risk-based screening and their role in influencing their wives' health-seeking behaviours.
Design: Qualitative focus group discussion (FGD) supplemented by quantitative data from a cohort study using a structured questionnaire.
Setting: This study was conducted in a community-based setting, with participants recruited online through non-profit organisations via social media and email.
BMJ Open
March 2025
Division of Paediatric Medicine and Paediatric Outcomes Research Team (PORT), The Hospital for Sick Children, Toronto, Ontario, Canada.
Objectives: Authentic patient and family engagement in child health research is defined as researchers working in partnership with patients and families on all aspects of the research process, including refining the research question, tailoring the intervention, devising study procedures and disseminating study findings. While there is good evidence of a positive impact of patient engagement on the research process, on research teams and on patient partners, there are few empirical data on the impact of patient and family engagement on research quality and dissemination. We conducted a systematic review to compare research quality and dissemination metrics for paediatric randomised controlled trials (RCTs) that engaged patients and families in the research process with trials that did not.
View Article and Find Full Text PDFBMJ Open
March 2025
Department of Orthopaedics Rheumatology and Musculoskeletal Sciences, University of Oxford Nuffield, Oxford, UK
Introduction: Gender-affirming care (GAC) includes interventions aimed at supporting an individual's gender identity. Canada is experiencing an increase in referrals for GAC, higher than any other health service; therefore, there is a need for a systematic approach to health outcome measurement to effectively evaluate care. This review aims to analyse health outcome measurement in Canadian GAC, focusing on what is measured, how it is measured and associated barriers and enablers.
View Article and Find Full Text PDFBMJ Open
March 2025
Department of Nursing Management, The First Affiliated Hospital of Guangzhou Medical University National Clinical Research Center for Respiratory Diseases, Guangzhou, Guangdong, China
Introduction: Family caregivers play an indispensable role in the care of solid organ transplant patients, undertaking a wide range of tasks from basic daily care to complex medical management. However, these responsibilities come with substantial challenges, placing additional strain on caregivers who bear significant physical, emotional, financial and social burdens, along with numerous unmet support needs. Currently, the exploration of challenges and support needs among family caregivers in the caregiving process is limited to primary research, lacking a synthesised and comprehensive understanding of the issues.
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