Background: Family involvement is crucial in a child's treatment; however, many professional nurses still neglect to involve families in their child's care. Studies have indicated that the perceived lack of family involvement in hospitalised children with autism spectrum disorder (ASD) is a problem in many countries. Few studies have been conducted in Africa with none relating to family involvement, highlighting the need for further research.
Aim: To develop in-depth insights into the challenges regarding family involvement in hospital nursing care of children with ASD, in the South African context.
Setting: Paediatric wards at selected private hospitals and family homes in the eThekwini District of KwaZulu-Natal.
Methods: An interpretative phenomenological analysis method was used. A sample of 10 professional nurses and 10 family members was achieved by purposive sampling. Data were collected from participants using semi-structured in-depth interviews.
Results: The following challenges were identified by the participants: the lack of knowledge of nurses regarding ASD, nurses not listening to family, uncaring attitude of nurses, nurses' lack of time and shortage of nursing staff.
Conclusion: Nurses play a pivotal role in overcoming the challenges to family involvement, in the hospital nursing care, of a child with ASD. Making nurses aware of the challenges will help improve family involvement in hospitals nursing for the child with ASD.
Contribution: This study added to the body of knowledge by identifying the challenges to the involvement of families in the hospital nursing care of a child with ASD.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11886471 | PMC |
| http://dx.doi.org/10.4102/hsag.v30i0.2731 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Unveiling the Pathogenic Role of Novel CPLANE1 Compound Heterozygous Variants in Joubert Syndrome: Insights Into mRNA Stability and NMD Pathway.
J Cell Mol Med
March 2025
Center for Reproductive Medicine, Zhongnan Hospital of Wuhan University, Wuhan, Hubei, People's Republic of China.
Joubert syndrome (JS) is a rare neurodevelopmental disorder associated with mutations in genes involved in ciliary function. Germline variants in CPLANE1 have been implicated in JS. In this study, we investigated a family with three adverse pregnancies characterised by fetal malformations consistent with JS.
View Article and Find Full Text PDFSpousal perceptions and their role in promoting breast cancer screening: a focus group study.
BMJ Open
March 2025
Genome Institute of Singapore (GIS), Agency for Science, Technology and Research (A*STAR), Singapore
Objectives: To explore husbands' views on breast cancer screening, risk-based screening and their role in influencing their wives' health-seeking behaviours.
Design: Qualitative focus group discussion (FGD) supplemented by quantitative data from a cohort study using a structured questionnaire.
Setting: This study was conducted in a community-based setting, with participants recruited online through non-profit organisations via social media and email.
Research quality and dissemination of paediatric randomised controlled trials with and without patient and family engagement: systematic review.
BMJ Open
March 2025
Division of Paediatric Medicine and Paediatric Outcomes Research Team (PORT), The Hospital for Sick Children, Toronto, Ontario, Canada.
Objectives: Authentic patient and family engagement in child health research is defined as researchers working in partnership with patients and families on all aspects of the research process, including refining the research question, tailoring the intervention, devising study procedures and disseminating study findings. While there is good evidence of a positive impact of patient engagement on the research process, on research teams and on patient partners, there are few empirical data on the impact of patient and family engagement on research quality and dissemination. We conducted a systematic review to compare research quality and dissemination metrics for paediatric randomised controlled trials (RCTs) that engaged patients and families in the research process with trials that did not.
View Article and Find Full Text PDFOutcome measurement for gender-affirming care in Canada: a systematic review.
BMJ Open
March 2025
Department of Orthopaedics Rheumatology and Musculoskeletal Sciences, University of Oxford Nuffield, Oxford, UK
Introduction: Gender-affirming care (GAC) includes interventions aimed at supporting an individual's gender identity. Canada is experiencing an increase in referrals for GAC, higher than any other health service; therefore, there is a need for a systematic approach to health outcome measurement to effectively evaluate care. This review aims to analyse health outcome measurement in Canadian GAC, focusing on what is measured, how it is measured and associated barriers and enablers.
View Article and Find Full Text PDFChallenges and support needs among family caregivers involved in solid organ transplant care process: a scoping review protocol.
BMJ Open
March 2025
Department of Nursing Management, The First Affiliated Hospital of Guangzhou Medical University National Clinical Research Center for Respiratory Diseases, Guangzhou, Guangdong, China
Introduction: Family caregivers play an indispensable role in the care of solid organ transplant patients, undertaking a wide range of tasks from basic daily care to complex medical management. However, these responsibilities come with substantial challenges, placing additional strain on caregivers who bear significant physical, emotional, financial and social burdens, along with numerous unmet support needs. Currently, the exploration of challenges and support needs among family caregivers in the caregiving process is limited to primary research, lacking a synthesised and comprehensive understanding of the issues.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!