Objectives: To demonstrate how nurses in pediatric care provide information and maintain access to health care for children with complex chronic conditions utilizing e-health or in-person support methods.
Methods: The study involved 12 nurses/specialist nurses from the medical departments at Queen Silvia Children's Hospital in Gothenburg. A qualitative method was employed, using individual interviews with a semi-structured guide and analyzed using a reflexive thematic analysis method.
Results: The analysis yielded two main themes and six subthemes. The nurses employed various information methods, used alone or in combination of oral communication, written materials, digital tools, visual aids, and demonstrations. Supportive conversations were provided for the child and the whole family. Nurses ensured contact with the entire care team, tailoring support to the child's individual needs based on age, maturity, developmental level, beliefs, culture, and language barriers.
Conclusion: Involving children in their own care through single or mixed methods, via e-health or in-person support, protects and strengthens their right to understand their health situation and health preparedness.
Practice Implications: Effective, customized support from healthcare staff can ensure that children with complex chronic conditions with families are actively involved, improving children's control over their care, adherence to treatment plans, self-esteem and health outcomes.
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