The article offers an overview of the progress in managing Hereditary Angioedema (HAE) in China, with a specific focus on the Greater Bay Area (GBA). Through the '4As' framework-Awareness, Access, Advocacy and Alliance-the article explores the challenges and advancements in HAE care. In terms of collaborative initiatives such as the HAE-ASIA (Angioedema Screening In Asia) collaboration and the GBA HAE Alliance "Hub-and-Spoke model" aim to bridge the gap between East and West, providing optimal patient care and advancing HAE management. By bridging the gap between East and West, the GBA aims to deliver optimal patient care and advance HAE management. Moving forward, it will be essential to persist in nurturing national and international collaborations, not only within China but also extending beyond its borders. These partnerships encourage the exchange of knowledge, research, and best practices, all of which are critical in propelling forward the care of HAE. By uniting as a worldwide community, we can significantly advance efforts to improve the quality of life for those affected by HAE across the globe.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1111/cea.70014 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Tumor protein 53 gene polymorphism, demographic attributes and associated risk factors among liver cancer patients in Calabar, Nigeria.
BMC Cancer
March 2025
Department of Guidance and Counseling, Faculty of Education, University of Calabar, Calabar, Nigeria.
Mutations in the TP53 gene had been attributed to the development of liver cancer. Hepatocellular carcinoma (HCC) and liver tumour are liver diseases having high mortality rates in several populations. There is no information on the TP53 gene polymorphism among liver diseases patients in Calabar, Nigeria.
View Article and Find Full Text PDFCT-based radiomics models using intralesional and different perilesional signatures in predicting the microvascular density of hepatic alveolar echinococcosis.
BMC Med Imaging
March 2025
Imaging Center, First Affiliated Hospital of Xinjiang Medical University, Urumqi, 830011, Xinjiang, China.
Objectives: To evaluate the performance of CT-based intralesional combined with different perilesional radiomics models in predicting the microvascular density (MVD) of hepatic alveolar echinococcosis (HAE).
Methods: This study retrospectively analyzed preoperative CT data from 303 patients with HAE confirmed by surgical pathology (MVD positive, n = 182; MVD negative, n = 121). The patients were randomly divided into the training cohort (n = 242) and test cohort (n = 61) at a ratio of 8:2.
A Look "Inside" the Sport of Wrestling: Examination of Head Acceleration Events and Mechanisms in Female High-School Wrestlers Using Instrumented Mouthguards.
Ann Biomed Eng
March 2025
Sport Injury Prevention Research Centre, Faculty of Kinesiology, University of Calgary, 2500 University Dr NW, Calgary, AB, T2N 1N4, Canada.
Purpose: To characterize true-positive head accelerations events (HAEs) captured with instrumented mouthguards (iMGs) in high-school female wrestlers using video-verification during matches and to measure players' perceptions of iMG use.
Methods: Thirty female high-school wrestlers (ages 16.4 ± 0.
Hereditary Angioedema with Normal C1 Inhibitor: A Quarter Century of Forward Progress and Persisting Obstacles.
J Allergy Clin Immunol Pract
March 2025
Division of Allergy, Department of Medicine, University of California San Diego, La Jolla, CA; Allergy Section, Medicine Service, San Diego VA Healthcare, San Diego, CA. Electronic address:
Hereditary angioedema with normal C1 inhibitor (HAE-nl-C1INH) was initially described almost a quarter century ago. Considerable progress towards unraveling the mysteries of this complex disease has been made during the intervening years. The ability to diagnose, classify, and treat HAE-nl-C1INH, however, continue to present daunting clinical challenges.
View Article and Find Full Text PDFHereditary Angioedema with Normal C1 Inhibitor: an Updated International Consensus Paper on Diagnosis, Pathophysiology, and Treatment.
Clin Rev Allergy Immunol
March 2025
Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.
Hereditary angioedema (HAE) has been recognized for almost 150 years. The newest form of HAE, where C1 inhibitor levels are normal (HAE-nC1INH), was first described in 2000. Over the last two decades, new types of apparent non-mast cell-mediated angioedema with normal quantity and activity of C1INH have been described, in some cases with proven genetic pathogenic variants that co-segregate with angioedema expression within families.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!