Background: Systematic approaches are essential for adapting and tailoring implementation strategies to specific dementia care settings if we are to move evidence‐based practice into ‘real world’ care that reaches most persons living with dementia. Care of Persons with Dementia in their Environments (COPE) is an evidence‐based dementia care program that provides families with skills to maximize functional abilities and quality of life of persons with dementia and reduce difficulties managing day‐to‐day care challenges for family caregivers. The COPE in PACE study was a national non‐inferiority trial that involved the implementation of COPE in Programs of All‐Inclusive Care of the Elderly (PACE)‐ which provide support for nursing home eligible Medicaid and Medicare enrollees (NCT04165213). Most PACE enrollees have cognitive impairment or dementia yet not one of the 200+ proven caregiver supportive programs have been integrated in this setting.
Method: Multiple data collection methods including observations, surveys, interviews, and focus groups were used to identify implementation barriers and the resulting program adaptations. Transcripts, templated notes, and field notes gleaned from these sources were cataloged according to the framework for reporting adaptations and modifications to evidence‐based interventions (FRAME‐IS).
Result: The leading barriers to implementation were lack of PACE staff protected time, high staff turnover, low ‘readiness’ in dementia caregivers and lack of dementia‐specific knowledge. Program adaptation strategies were made to improve the feasibility, reach/engagement and fit at the site level and are summarized in Table 1. Different implementation approaches were required at each PACE site and were driven by context dependent factors.
Conclusion: It is important not to underestimate the context dependent factors that may impact uptake of evidence‐ based programs. The array of data collection methods allowed for a greater understanding of the barriers to implementation and reasons for adaptation and can provide guidance for future researchers. The FRAME‐ IS model was useful for documenting adaptations made while implementing COPE in PACE and helped illustrate how adaptations clustered into unique prototypes. Our findings demonstrate how adaptability in delivery characteristics is essential for the translation of a dementia care program into real world practice and provide an example methodology for tracking these changes.
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http://dx.doi.org/10.1002/alz.092495 | DOI Listing |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11712157 | PMC |
Crit Care Med
November 2024
Department of Intensive Care, Copenhagen University Hospital, Copenhagen, Denmark.
Objectives: Rocking motion therapy has been shown to calm people with dementia but has never been investigated in delirious patients in the ICU. The aim of this clinical trial was to investigate the efficacy and safety of a rocking motion vs. nonrocking motion chair on the duration of delirium and intensity of agitation in ICU patients with delirium.
View Article and Find Full Text PDFCrit Care Med
January 2025
Department of Intensive Care, Copenhagen University Hospital, Copenhagen, Denmark.
Objectives: Rocking motion therapy has been shown to calm people with dementia but has never been investigated in delirious patients in the ICU. The aim of this clinical trial was to investigate the efficacy and safety of a rocking motion vs. nonrocking motion chair on the duration of delirium and intensity of agitation in ICU patients with delirium.
View Article and Find Full Text PDFCrit Care Med
December 2024
Department of Psychiatry and Human Behavior, Brown University, Alpert Medical School, Providence, RI.
Objectives: Neurocritically ill patients are at high risk for developing delirium, which can worsen the long-term outcomes of this vulnerable population. However, existing delirium assessment tools do not account for neurologic deficits that often interfere with conventional testing and are therefore unreliable in neurocritically ill patients. We aimed to determine the accuracy and predictive validity of the Fluctuating Mental Status Evaluation (FMSE), a novel delirium screening tool developed specifically for neurocritically ill patients.
View Article and Find Full Text PDFAm J Ther
January 2025
Faculty of Medicine, "Transilvania" University, Brasov, Romania; and.
Background: Dementia leads to cognitive decline affecting memory, thinking, and behavior. Current pharmaceutical treatments are symptomatic, with limited efficacy and significant drawbacks. Ginkgo biloba extract (EGb761) is being explored as an adjuvant therapy for dementia because of its potential neuroprotective effects.
View Article and Find Full Text PDFHealthcare (Basel)
December 2024
Innovation in Dementia and Aging (IDEA) Lab, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
: Canada's long-term care (LTC) sector is struggling with a significant staffing crisis related to shortages, high-turnover rate, and challenging working conditions. The COVID-19 pandemic exacerbated these issues and emphasized the need for improved mental health support for LTC staff. Understanding and addressing the wellbeing of staff is important for ensuring quality of care and promoting a positive work environment for a healthy workforce.
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