Introduction: The professional caregiver workforce (nursing assistants and personal care aides) is critical to quality of care and quality of life in nursing home (NH) and assisted living (AL) settings. The work is highly stressful, so improving responses to stress in this workforce could contribute to satisfaction and retention. This research developed a coping measure appropriate for the diverse professional caregiver workforce.
Methods: A multistage process identified and refined existing and new items. Ten racially and ethnically diverse professional caregivers advised on item selection and refinement. Subsequently, using an online QR code-accessed questionnaire, data were collected from 391 professional caregivers from 10 NHs and 3 AL communities in three states, yielding a sample that was 87% female, widely distributed in age and experience, and racially/ethnically diverse (42% Black, non-Hispanic/Latinx; 25% White, non-Hispanic/Latinx; 20% Hispanic/Latinx; 7% Asian, non-Hispanic/Latinx; and 21% born outside the United States). Analyses examined psychometric properties and principal components analysis identified factors within which items and scales aggregated.
Results: The final instrument, named the Long-Term Care Cope (LTC Cope), includes 26 items aggregated into six factors, which explained 60% of the variance: avoidance (five items, loadings 0.58-0.76); adaptive psychological strategies (six items, loadings 0.33-0.89); active engagement (five items, 0.47-0.89); maladaptive psychological strategies (three items, loadings 0.90-0.93); actions to minimize emotional impact (four items, loadings 0.28-0.74); and substance use (three items, loadings 0.61-0.88). Respondents often reported using multiple items within multiple factors when responding to stressful situations at work.
Discussion: The coping strategies of professional caregivers are highly individual, with caregivers tending to utilize multiple strategies. The LTC Cope instrument and its component subscales are promising for future research to improve understanding of stress-related coping in this diverse workforce and inform and evaluate interventions.
Highlights: A new measure was developed to help us better understand how professional caregivers (nursing assistants and personal care aides) deal with work-related stress.Professional caregivers in nursing homes and assisted living tend to use multiple approaches to deal with job stress.Ways professional caregivers cope with stress vary widely-some address problems directly, some try to deal with the emotional toll of the work, and others involve avoiding the problems or their emotional consequences.
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http://dx.doi.org/10.1002/trc2.70010 | DOI Listing |
Res Dev Disabil
January 2025
Faculty of Medicine, Technion - Israel Institute of Technology, Center for Innovation in Social Work, Tel Hai College, Israel. Electronic address:
Background: Research has not fully elucidated the challenges experienced by the caregivers of children with developmental disabilities (DDs) in different sociocultural contexts. Studies on parents, especially fathers, of children with DDs in the Middle East are especially rare. Similarly, the subject of collaboration between Bedouin fathers and professionals has seen little research.
View Article and Find Full Text PDFSpec Care Dentist
January 2025
Cerebral Palsy Alliance Research Institute, Specialty of Child & Adolescent Health, Sydney Medical School, Faculty of Medicine & Health, The University of Sydney, Sydney, Australia.
Aims: To investigate caregiver-reported dental care experiences and oral health-related quality of life (OHRQoL) of children and young people with cerebral palsy (CP).
Methods: Between May and August 2023, caregivers of children and young people from three Australian states were invited to complete questionnaires, including the Child Oral Health Impact Profile (COHIP-SF 19).
Results: Sixty-eight caregivers participated in the survey.
BMJ Open
January 2025
Deep Digital Phenotyping Research Unit, Department of Precision Health, Luxembourg Institute of Health, Strassen, Luxembourg
Objectives: Diabetes distress can negatively affect the well-being of individuals with type 1 diabetes (T1D). Voice-based (VB) technology can be used to develop inexpensive and ecological tools for managing diabetes distress. This study explored the competencies to engage with digital health services, needs and preferences of individuals with T1D or caring for a child with this condition regarding VB technology to inform the tailoring of a co-designed tool for supporting diabetes distress management.
View Article and Find Full Text PDFBMJ Open
January 2025
Nanjing Medical University, Nanjing, Jiangsu, China.
Introduction: It is complicated and time-consuming to care for tracheostomised patients, and many informal caregivers are said to feel a variety of burdens, although we are unsure of the specifics of this burden. This scoping review aims to identify and examine the caregiver burden encountered by informal caregivers of patients with tracheostomy.
Methods And Analysis: This scoping review will be carried out in accordance with Arksey and O'Malley and its extended framework, along with adherence to the guidelines provided by the Joanna Briggs Institute.
Geriatr Nurs
January 2025
School of Nursing, Jilin University, Changchun, Jilin, 130021, China. Electronic address:
Objective: To explore the perspectives and perceptions of persons with mild cognitive impairment (MCI), their caregivers, and healthcare professionals on computerized cognitive training (CCT).
Material And Methods: Utilizing phenomenological research methods, 12 MCI patients, 11 caregivers, and 15 healthcare professionals were recruited. Data were collected through four focus group interviews and six semi-structured in-depth interviews conducted between March 2023 and June 2023.
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