AI Article Synopsis

  • * A qualitative study involved interviews with AYA participants and their caregivers, focusing on their experiences before and after working with a PN.
  • * Key findings revealed that early on, participants felt uncertain about leaving a supportive environment, but after the intervention, they benefited from emotional support, practical help, and guidance towards independence.

Article Abstract

Introduction: The transition from pediatric to adult care poses challenges for adolescents and young adults (AYA) with chronic conditions and their caregivers. A patient navigator (PN) intervention may mitigate transition-related barriers.

Methods: A qualitative study was conducted within a pragmatic randomized controlled trial. A purposive sample was recruited of AYA with diverse diagnostic and demographic characteristics who worked with the PN and/or their caregivers. Seventeen participants completed semi-structured interviews at baseline and post-intervention and optional journal entries. Thematic analysis was used inductively.

Results: Analysis yielded two themes from baseline interviews: 1) uncertainty and hesitation with leaving a place of support, 2) navigator assistance with post-secondary education, and three themes from post-intervention interviews: 1) emotional support, 2) informational and task-focused support, 3) navigator guidance to become more independent.

Discussion: Our findings describe the needs of AYA and the experience of PN support; our findings may guide future implementation of PNs in transition care.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11658225PMC
http://dx.doi.org/10.1016/j.hctj.2024.100088DOI Listing

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