AI Article Synopsis
- People with disabilities face significant health disparities in perinatal care, often experiencing negative, discriminatory treatment during labour and delivery based on disability injustice.
- Semi-structured interviews with 31 individuals in Ontario highlighted both the negative experiences of disrespectful care and the positive outcomes of collaborative, respectful treatment that aligns with principles of disability justice.
- Promoting collective access to respectful care can enhance perinatal health services for disabled persons by encouraging a more interdependent and inclusive approach to decision-making between patients and healthcare providers.
Article Abstract
Background: People with disabilities experience perinatal health disparities. This qualitative study examines disabled people's experiences of labour and delivery care from a disability justice lens.
Methods: Semi-structured interviews were conducted between July 2019 and February 2020 with 31 women and transgender people aged 18-45 years with physical, sensory, and/or intellectual/developmental disabilities, who were living in in Ontario, Canada and had given birth in the previous five years.
Results: People with disabilities described negative experiences of provider-driven, disrespectful, and discriminatory labour and delivery care that can be interpreted as examples of disability injustice and obstetric ableism. People with disabilities also described positive experiences of collaborative, respectful, and disability-affirming labour and delivery care that can be interpreted as examples of disability justice, facilitated by what feminist disability justice scholars and activists call collective access.
Conclusions: Collective access to labour and delivery care can improve perinatal health care for people with disabilities and promote disability justice. Reimagining care-related decision-making as an interdependent, collaborative, respectful, and disability-affirming process shared between patients and providers can help to facilitate collective access to labour and delivery care.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11660975 | PMC |
| http://dx.doi.org/10.1186/s12884-024-07036-3 | DOI Listing |
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