AI Article Synopsis
- - The study focuses on improving transitional care for adolescents with juvenile idiopathic arthritis (JIA) as they move to adult healthcare systems, suggesting the need for tailored programs in each country.
- - A Delphi study involving adolescents, parents, and clinicians was conducted to gather expert opinions and identify key components of transitional care, with significant participation in the initial surveys.
- - While a consensus was reached on essential transitional care issues for JIA patients, further agreement is needed on practical applications of a final checklist to enhance care in Turkey.
Article Abstract
Background: The field of transitional care for chronic conditions in adolescents, notably juvenile idiopathic arthritis (JIA), is rapidly growing. Transitioning these patients to adult healthcare systems presents significant challenges in practical implementation. Consequently, it would be appropriate for each country to develop a transition program tailored to its specific infrastructure. To pursue this goal, a Delphi study was conducted to identify the key components of transitional care in JIA.
Methods: Three panels and two rounds were held consisting of adolescents and young adults, parents, and clinicians (pediatric or adult rheumatologists). As a result, feedback on acceptance of the key statements of transitional care was obtained using the Delphi method.
Results: Out of 102 contacted, 88 (86.3%) participants responded to the Round 1 survey, which included 48 clinicians, 20 youths, and 20 parents. In Round 2, the number of clinicians dropped to 29, while the number of youths and parents remained constant. Based on expert opinions, 29 statements were selected for the first round. Statements that received ≥ 70% approval in the first round advanced to the next round. Sixteen statements did not achieve ≥ 70% approval. Of the remaining, 12 were reviewed in the second round, while four were excluded.
Conclusion: Although consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon. Acceptance and applicability of the final 20-item checklist in clinical practice are critical for advancing JIA transition care in Turkey.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1186/s12969-024-01047-2 | DOI Listing |
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11654283 | PMC |
Publication Analysis
Top Keywords
Similar Publications
Strategies to Guide Paediatric Type 1 Diabetes Management and Transition of Care: A State-Of-The-Art Review.
J Adv Nurs
December 2024
School of Nursing, College of Science and Health, DePaul University, Chicago, Illinois, USA.
Aim: The aim of the study was to synthesise current evidence on the transition of type 1 diabetes management responsibility from caregiver to child.
Design: A state-of-the-art review was conducted.
Methods: Using Rayyan software, two authors independently performed the study selection.
Pediatric to Adult Care Transition in the Hospital Context (PATCH) Tool: A Novel Tool to Assess Pediatric Institutional Guidelines for Inpatient Care of Adults.
Acad Pediatr
December 2024
Department of Medicine, University of Rochester School of Medicine and Dentistry, Rochester, NY; Department of Pediatrics, University of Rochester School of Medicine and Dentistry, Rochester, NY. Electronic address:
Objective: The growing number of adults with childhood onset chronic conditions (COCC) is reflected in the increase of adult-aged admissions to pediatric institutions. Despite national bodies advising pediatric institutions to have a pediatric to adult healthcare transition (HCT) policy, little guidance is available on if or how to include inpatient care. We sought to create a framework-based Pediatric to Adult Transitional Care in the Hospital Context (PATCH) tool to assess how inpatient care of adults is addressed in pediatric institutional guidelines or policies (hereafter guidelines) as a first step towards informing future PATCH guideline development.
View Article and Find Full Text PDFCompassion Fatigue Rounds (CFR): A Proactive Brief Intervention to Introduce Mental Health Awareness in a Veterinary Clerkship.
J Vet Med Educ
December 2024
Anesthesiology, University of Florida College of Medicine and College of Veterinary Medicine, 1600 SW Archer Rd., Gainesville, FL 32610, USA.
The mental health and well-being of veterinary students and graduate veterinarians is a critical area of concern. Veterinary students experience high levels of psychological distress, particularly during transitional periods such as clinical training. While mental health interventions typically target pre-clinical years, the unique challenges faced by clinical students are often overlooked, resulting in inadequate support during important periods of professional development.
View Article and Find Full Text PDFDysregulated alveolar epithelial cell progenitor function and identity in Hermansky-Pudlak syndrome.
JCI Insight
December 2024
Division of Pulmonary and Sleep Medicine, Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, United States of America.
Hermansky-Pudlak syndrome (HPS) is a genetic disorder of endosomal protein trafficking associated with pulmonary fibrosis in specific subtypes, including HPS-1 and HPS-2. Single mutant HPS1 and HPS2 mice display increased fibrotic sensitivity while double mutant HPS1/2 mice exhibit spontaneous fibrosis with aging, which has been attributed to HPS mutations in alveolar epithelial type II (AT2) cells. We utilized HPS mouse models and human lung tissue to investigate mechanisms of AT2 cell dysfunction driving fibrotic remodeling in HPS.
View Article and Find Full Text PDFFactors associated with post acute care utilization after mastectomy for breast cancer patients.
Breast Cancer
December 2024
Institute of Health Services Research, Yonsei University, Seoul, Republic of Korea.
Background: Although the demand for care immediately after mastectomy is rising, and such medical services are referred to as post-acute care (PAC), there is limited evidence on the factors influencing PAC choices among these patients in Korea.
Methods: A total of 106,670 patients diagnosed with breast cancer and undergoing mastectomy were extracted from the Central Cancer Registry data from 2012 to 2019 using Public Cancer Library data of KCURE. PAC was defined as utilization of long-term care hospital (LTCH), hospital-based nursing care (HBNC), or HBC (hospital-based care) within 2 months post-surgery.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!