The widespread digitization of information, advances in data processing and the emergence of internet-connected devices have led to a proliferation of data, often loosely referred to as big data. With this digital transformation, offering open data - that is, data freely available for modification and reuse - has emerged as a key strategy for encouraging transparency and innovation. Data reuse holds particular importance in the small island developing states of the Caribbean, which have a limited resource pool from which to tackle the landscape of social priorities. Efforts made towards data-sharing must consider privacy, security and the ethical use of information, and the tension between data as a social good and data for commercial gain can be a determinant of data-sharing decisions. A multidisciplinary approach is needed to realize the potential of data-sharing. In this article, we describe techniques (or pathways) for growing the Caribbean's stock of open data, classifying these into four types. Initiative pathways are techniques to broaden the range of data producers that share data. Infrastructure pathways deal with the practicalities of making data publicly available. Governance pathways are regulations and frameworks that guide data producers, including in meeting their legal data obligations. Training and communication pathways are efforts to raise awareness and knowledge about the benefits and practices of data-sharing. Data-sharing can offer a cost-effective evidence base for the Caribbean's continuing digital transformation. Sustainable sharing is key, and it must include robust technical infrastructure and governance, and ongoing communication.
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http://dx.doi.org/10.26633/RPSP.2024.64 | DOI Listing |
Adv Ther
December 2024
Global Medical and Patient Affairs, Servier, Suresnes, France.
Introduction: The aim of the observational SIMPLE study was to assess real-life effectiveness and safety of a single-pill combination (SPC) of perindopril arginine/amlodipine in a broad range of subjects with newly diagnosed mild-to-moderate hypertension treated in Canadian general practice.
Methods: Treatment-naïve participants aged 18-65 years with mild-to-moderate hypertension, whose physicians decided to initiate the perindopril/amlodipine SPC, were recruited from Canadian clinical practice from October 2017 to February 2019. Participants were followed at 3- (M3) and 6-month (M6) visits after treatment initiation.
Adv Ther
December 2024
GSK, US Value Evidence and Outcomes, Collegeville, PA, 19426-0989, USA.
Introduction: Chronic obstructive pulmonary disease (COPD) is associated with exacerbations which can reduce quality of life and increase mortality. Single-inhaler triple therapy (SITT) is recommended for maintenance treatment of COPD among patients experiencing exacerbations despite dual-therapy use. This real-world comparative effectiveness study compared the impact of SITTs, fluticasone furoate/umeclidinium/vilanterol (FF/UMEC/VI), and budesonide/glycopyrrolate/formoterol fumarate (BUD/GLY/FORM), on COPD exacerbations and mortality.
View Article and Find Full Text PDFPacing Clin Electrophysiol
December 2024
Arrhythmia Unit, Department of Cardiology, Hospital Juan Ramón Jiménez, Huelva, Spain.
Background: Interventricular dyssynchrony derived from the classic non-physiological stimulation (n-PS) of the right ventricle (RV) is a known cause of left ventricular dysfunction (LVDys).
Methods: This was a prospective descriptive single-center study. We analyzed patients who develop LVDys with n-PS, and the results after upgrading to conduction system pacing (CSP).
Int J Health Plann Manage
December 2024
Centre for Global Chronic Conditions, London School of Hygiene & Tropical Medicine, London, UK.
Background: Reducing inequities in hypertension control among those affected in low- and middle-income countries requires person-centred health system responses based on a contextualised understanding of the choices and care pathways taken by those who rely on the services provided, particularly those from poor and marginalised communities. We examine patterns of care seeking and pathways followed by individuals with hypertension from low-income households in the Philippines and Malaysia. This study aims to fill a significant gap in the literature by analysing the stages at which individuals make decisions that may affect the successful control of their blood pressure.
View Article and Find Full Text PDFJ Autism Dev Disord
December 2024
Department of Psychology, University of Wyoming, Laramie, WY, USA.
Purpose: Autistic adults experience high rates of traumatic events and PTSD. However, little work has evaluated motor vehicle accident (MVA) related trauma symptoms. The goal of this brief report was to provide pilot data characterizing MVA-related peritraumatic reactions, trauma symptoms, and rates of PTSD diagnosis and mental health service use among Autistic compared to non-autistic adults.
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