Chronic dermatoses affect not only sick individuals: a review of family and caregiver burden assessment tools.

Postepy Dermatol Alergol

Department of Dermatology, Venereology, and Allergology, Wroclaw Medical University, Wroclaw, Poland.

Published: October 2024

AI Article Synopsis

  • The focus in dermatology has expanded beyond just treating skin issues to prioritizing the quality of life (QoL) for both patients and their families.
  • The study aims to identify and categorize tools that measure how chronic skin diseases affect the QoL of family members and caregivers.
  • Results showed 20 relevant instruments, which can be divided into generic, dermatology-specific, and disease-specific categories, emphasizing the need for these tools in clinical practice to better support families.*

Article Abstract

Introduction: The focus in dermatology has shifted from solely treating skin conditions to considering the quality of life (QoL) of patients and their family members.

Aim: To identify and categorise instruments that assess the impact of chronic skin diseases on the QoL of family members and caregivers.

Methods: A narrative review was conducted using the Scopus and Medline databases, with search terms related to QoL, dermatology, and family/caregivers. Articles published up to January 2024 were reviewed, and relevant instruments were categorised.

Results: The search yielded 2799 papers, of which 153 were reviewed in detail. Twenty instruments were identified and categorised into generic, dermatology-specific, and disease-specific tools.

Conclusions: The review highlights the importance of assessing family QoL in dermatology. Integrating these tools into clinical practice can enhance support for family members, improving overall patient care. Further development and refinement of these tools are necessary to capture the full impact on family QoL.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11589645PMC
http://dx.doi.org/10.5114/ada.2024.141685DOI Listing

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