Advance care planning in adults with kidney failure has been understudied and limited to written advance directives. Many Black adults prefer informal conversations with family, and yet this form of advance care planning is underexplored in research. In this study, we aimed to identify the multilevel factors that facilitate informal advance care planning with family among Black adults with kidney failure. Black adults with kidney failure were recruited using the electronic health record to identify prospective participants who met inclusion criteria from a metropolitan hospital in the Mid-Atlantic region of the United States from June 2021 to June 2022. Participants completed a survey capturing the personal, interpersonal, and structural level factors that facilitate informal advance care planning conversations with family, and sociodemographic characteristics. The study included 301 respondents, 66% engaged in informal advance care planning and 37% completed an advance directive. Mean age was 56 years, 52% were female, 25% received a high school education or less. Illness acceptance (OR 1.07, = 0.04) and emotional support (OR 1.44, = 0.02) facilitated Informal advance care planning, as did having master's or doctoral level education (OR 2.37, = 0.04). A recent hospitalization (OR 1.79, = 0.04) and experience as a surrogate decision maker (OR = 1.76, = 0.05) also facilitated Informal advance care planning. Informal advance care planning conversations occur more frequently than written directives among Black adults with kidney failure. Future interventions should consider cultural preferences by developing interventions that facilitate informal advance care planning conversations with family.
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http://dx.doi.org/10.1177/10499091241298280 | DOI Listing |
J Health Organ Manag
December 2024
Health Sciences, Faculty of Social Sciences, Tampere University, Tampere, Finland.
Purpose: Local health systems form the basis for health system resilience. Leaders' standpoints are crucial in advancing resilience capacities and change. This study analysed how local health system leaders' approaches to change reflect health system resilience capacities.
View Article and Find Full Text PDFJ Pharm Pract
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Department of Pharmacy, Massachusetts General Hospital, Boston, MA, USA.
: Emergency response teams are designed to promptly deliver care to hospitalized patients experiencing acute decompensation events. Pharmacists are an integrated part of emergency response teams and their presence at emergency response events has been shown to improve adherence to institutional and advanced cardiac life support (ACLS) guidelines. This study assesses the impact of pharmacist involvement at emergency responses and time clinical pharmacists dedicate to emergency response.
View Article and Find Full Text PDFJ Thorac Cardiovasc Surg
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Norton Thoracic Institute, Dignity Health, Phoenix, Arizona (nothing to disclose).
Objectives: Fortunately, operating room deaths and unexpected deaths are infrequent occurrences. However, when they occur, the surgeon is called upon to deliver this news to family and loved ones. There is a paucity of literature on this topic and little guidance preparing cardiothoracic surgeons for this important but difficult situation.
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Int J Ment Health Nurs
February 2025
Department of Head and Skin, Faculty of Medicine and Health Sciences, Ghent University & Ghent University Hospital, Ghent, Belgium.
Despite advancements in promoting family engagement in mental health settings, limited involvement of family members persists in forensic mental healthcare. Forensic mental healthcare professionals face various barriers in engaging families, including a patient-centered approach and resource constraints. However, limited understanding exists of professionals' experiences with family engagement, which is crucial for improving care practices in this setting.
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