An international investigation of the education needs of health professionals conservatively managing genital lymphoedema: survey findings.

The education needs of health professionals supporting patients with genital lymphoedema (oedema) are unknown. An accurate prevalence of genital oedema, in men, women and children, has not been achieved. It may have many potential causes and multiple psychosocial influences. The vast variations in patient origins and access and delivery of service provision compound the complexity of the management of genital oedema. The aim of this study was to understand the education needs of health professionals supporting patients with genital oedema and how best to meet these needs. This mixed-method project used an online survey, distributed through national and international professional lymphoedema groups, followed by focus groups. This article reports the results of the survey. The views of 583 health professionals from 31 countries were collated. Only 42% respondents had completed specific education in treating genital lymphoedema, despite 92% feeling it was necessary. Only 7% reported that patient identification and referral was timely. Wound care skills had been used by 26% of respondents. Education subjects considered 'essential' and those of 'least confidence' were identified. E-learning packages, videos, printed materials and collaborative events with urology and pelvic health provide opportunities to address the identified needs. This original project identified unmet needs among health professionals conservatively managing genital lymphoedema.