Background: Parents of technology-dependent children constitute a different population in society and face diverse problems during caregiving.
Methods: This study aimed to identify and visualize studies conducted from 1990 to 2024 on technology-dependent children, home care, and parental discharge education and determine global trends. A descriptive and bibliometric study design was employed. Data were obtained from the Web of Science Core Collection database, and bibliometric analyses were performed with performance analysis, visualization, and mapping using the Biblioshiny interface in the R software. Screening yielded a total of 157 publications. A total of 138 publications were included.
Findings: The keywords frequently used by the authors included "home care," "technology-dependent children," "palliative care," "home mechanical ventilation," "child," "family," and "pediatric." Co-author keywords with moderate centrality and density are "home mechanical ventilation" (Betw = 106.47), "technology-dependent" (Betw = 106.47), "home mechanical ventilation" (Betw = 106.47). Each article had 4.41 co-authorships, with an international co-authorship rate of 6.52 %.
Conclusions: This study provided important data on studies focusing on technology-dependent children, home care, and parental discharge education.
Application To Practice: Since the number of studies in the field is small, the findings of this study are essential in guiding researchers about gaps in the literature.
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http://dx.doi.org/10.1016/j.pedn.2024.10.024 | DOI Listing |
Disabil Rehabil
November 2024
University of South-Eastern Norway, Kristianstad University, Norway.
Purpose: As the group of technology-dependent children with long-term tracheostomy continues to expand, we aimed to explore parents' lived experience of everyday life with a child dependent on long-term tracheostomy.
Materials And Methods: Six parents of four children were interviewed and the transcripts analyzed using Giorgi's descriptive phenomenology.
Results: All aspects of everyday life, parent-child interaction, and interaction with the surrounding outside world were affected by technology dependency.
Glob Qual Nurs Res
November 2024
University of Porto, Porto, Portugal.
Parent caregivers of children requiring life-saving medical technology (e.g., mechanical ventilation) report higher levels of stress and poorer health than other caregivers, often neglecting health-promoting behaviors for themselves.
View Article and Find Full Text PDFJ Racial Ethn Health Disparities
November 2024
Department of Pediatrics, University of California San Diego, San Diego, CA, USA.
Background And Objective: Access to personal medical information promotes patient understanding of health issues and enables patient self-advocacy of healthcare needs. The advent of electronic medical record systems and the 2016 21st Century CURES Act promoted and encouraged patient access to personal medical information, yet technology-dependent modalities have often disadvantaged certain communities. We sought to evaluate whether disparities existed in access to patient portals at our institution, the main pediatric care provider in an area serving one million children.
View Article and Find Full Text PDFJ Pediatr Nurs
November 2024
Tarsus University, Faculty of Health Sciences, Nursing Department, Takbaş Mahallesi Kartaltepe, Sokak 33400 Tarsus, Mersin, Turkey. Electronic address:
Background: Parents of technology-dependent children constitute a different population in society and face diverse problems during caregiving.
Methods: This study aimed to identify and visualize studies conducted from 1990 to 2024 on technology-dependent children, home care, and parental discharge education and determine global trends. A descriptive and bibliometric study design was employed.
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