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Multi-stakeholder perspectives into the experiences of siblings when a child is critically ill: A qualitative systematic review.
Intensive Crit Care Nurs
December 2024
The Royal Children's Hospital, Paediatric Intensive Care Unit, Parkville, Australia; La Trobe University, School of Nursing and Midwifery, Bundoora, Australia.
Objectives: A child's critical illness and admission to intensive care can have significant short- and long-term impacts for the parents and hospitalized child. While experiences of parents have been explored, the impact on siblings remains unclear. The aim was to systematically review and synthesize qualitative research exploring the experiences of siblings when a child is critically ill, from the perspectives of siblings and relevant key stakeholders.
View Article and Find Full Text PDFOn compromising with vaccine-hesitant families.
Front Pediatr
December 2024
Department of Medical Ethics, The Children's Hospital of Philadelphia, Philadelphia, PA, United States.
Barriers and facilitators to caregiver comfort with health-related social needs data collection in the pediatric clinical setting.
Health Serv Res
December 2024
Clinical Futures and Policy Lab, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Objective: To identify barriers and facilitators to family-level comfort with health-related social needs (HRSN) data collection and documentation in the pediatric clinical setting.
Study Setting And Design: This qualitative study was nested within a pragmatic randomized controlled trial on social care integration in the pediatric clinical setting. We used a hybrid random-purposive strategy to sample 60 caregivers of pediatric patients ages 0-25 presenting at two primary care clinics and one emergency department affiliated with a large pediatric healthcare system between September 2022 and 2023.
Telehealth Occupation-Based Coaching for Rural Parents of Children With Type 1 Diabetes: A Randomized Controlled Trial.
Am J Occup Ther
January 2025
Emily Knezevich, PharmD, CDECS, is Professor, Department of Pharmacy Practice, Creighton University, Omaha, NE.
Importance: Because of the complexity of their child's diabetes management, parents often assume all care duties and report needing additional assistance to resume family routines.
Objective: To examine the preliminary efficacy of a telehealth occupation-based coaching intervention for rural parents of a child living with Type 1 diabetes (T1D) to improve child glycemic levels, family quality of life, and parental self-efficacy.
Design: Double-blinded, two-arm, pilot randomized controlled trial.
"We do it all": A qualitative exploration of the caregiver role for young adults with cerebral palsy.
Health Care Transit
December 2023
Department of Physical Medicine and Rehabilitation, Division of Pediatric Rehabilitation Medicine, University of Colorado Anschutz School of Medicine, 13123 East 16th Avenue, Box 285, Aurora, CO 80045, USA.
Aim: To describe the complex roles of and crucial support provided by caregivers to young adults with cerebral palsy (CP) during the transition to adulthood.
Method: This was a qualitative study. We conducted 20 semi-structured interviews (13 caregiver; 7 patient/caregiver dyad) and analyzed data using a qualitative descriptive approach informed by phenomenological principles.
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