AI Article Synopsis
- Patient and Public Involvement and Engagement (PPIE) means including patients and the public in creating and using health technologies for brain-related diseases.
- A study looked at articles about how patient input was used in developing these digital health tools and found only a small number that really focused on this involvement.
- The review showed that PPIE isn't consistently reported, suggesting more examples and guidance are needed, and future studies should consider worldwide practices.
Article Abstract
Introduction: Patient and Public Involvement and Engagement (PPIE) involves working '' or '' patients and the public, rather than ',' ',' or '' them, and is integral to neurological and digital health research. This rapid review examined PPIE integration in the development and implementation of digital health technologies for neurological conditions.
Methods: Key terms were input into six databases. Included articles were qualitative studies or PPIE activities involving patient perspectives in shaping digital health technologies for neurological conditions. Bias was evaluated using the NICE qualitative checklist, with reporting following PRISMA guidelines.
Results: 2,140 articles were identified, with 28 included. Of these, 25 were qualitative studies, and only three were focused PPIE activities. Patient involvement was mostly limited to one-off consultations during development.There was little evidence of PPIE during implementation, and minimal reporting on its impact.
Conclusions: PPIE has been inconsistently reported in this research area, highlighting the need for more guidance and best-practice examples This review used a UK-based definition of PPIE, which may have excluded relevant activities from other countries. Future reviews should broaden terminology to capture PPIE integration globally.
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| http://dx.doi.org/10.1080/14737167.2024.2410245 | DOI Listing |
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