AI Article Synopsis

  • The Individual Care Plan (ICP) for pediatric palliative care (PPC) was created to aid healthcare professionals in offering personalized care to children with serious illnesses and their families, but it's not being utilized for all who need it.
  • Healthcare professionals expressed a desire to use the ICP to collaborate with parents on care plans to ensure coordination, continuity, and shared decision-making, particularly for children with complex chronic conditions.
  • Future research should investigate whether implementing the ICP can fulfill these broader care objectives effectively in practice.

Article Abstract

Background: To ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual Care Plan (ICP) for PPC was developed. However, in practice, the ICP for PPC is not used for all children in need of PPC. Insight into why, for which problem and for which children HCPs wish to use an ICP in PPC is therefore necessary to assure that the ICP can be fully implemented in practice.

Methods: Two semi-structured focus group interviews were held with 15 experienced healthcare professionals in PPC. Data were thematically analyzed.

Results: Participants wish to use an ICP to collaboratively establish a plan with parents for the current and future care and treatment of the child. By doing so, they hope to achieve coordination and continuity of care, to achieve shared decision-making, and to support parents and other healthcare professionals in the care of the child. Participants think the ICP could also be used in the care for children with complex chronic conditions.

Conclusion: The purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC was developed. Future research should focus on whether the use of an ICP in PPC practice can achieve these purposes.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11452972PMC
http://dx.doi.org/10.1186/s12904-024-01569-2DOI Listing

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