Background: Autonomy is one of the key ethical principles enshrined in Part II of the Nigerian National Health Act 2014. To ensure compliance with this principle, it is pertinent that Health Care Professionals (HCPs) understand and know what it entails to ensure that patients are empowered to pursue their decisional autonomy. This survey seeks to explore what HCPs consider as relevant for empowering patients to exercise decisional autonomy, in line with the Nigerian Health Act.
Methods: An online survey, targeted at Nigerian HCPs, was conducted to explore what they consider as relevant in enabling an individual to make autonomous decisions about their health and treatment.
Results: HCPs consider patients' soundness of mind as relevant in making autonomous decisions about their health and treatment. Factors such as patients' current health status, their understanding of treatment options, risks, benefits, and patients' ability to understand and retain information were considered relevant in making informed decisions about their health. Factor analysis of the study questionnaire revealed that the designed questionnaire can be used to audit how well HCPs empower their patients with their decisional autonomy. The reliability coefficient of the questionnaire was found at 0.718.
Conclusions: Our study found a convergence of views by HCPs and the Nigerian Health Act on enabling the decisional autonomy of patients regarding their health and treatment. Competent patients should be given the necessary knowledge about their condition, available diagnosis, and available treatment as well as support to empower them to make truly autonomous decisions regarding their health and treatment.
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BMC Med Inform Decis Mak
December 2024
Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Background: To protect minors' future autonomy, professional organizations have historically discouraged returning predictive adult-onset genetic test results and carrier status to children. Recent clinical guidance diverges from this norm, suggesting that when minors have genomic sequencing performed for clinical purposes, parents and children should have the opportunity to learn secondary findings, including for some adult-onset conditions. While parents can currently opt in or out of receiving their child's secondary findings, the American Society of Human Genetics Workgroup on Pediatric Genetic and Genomic Testing suggests including adolescents in the decision-making process.
View Article and Find Full Text PDFBackground: As cultural contexts have gained increasing relevance in medical decision-making, the current mainstream definition of autonomy is insufficient. A viable alternative framework, relational autonomy posits that agents' actions are influenced by and embedded in society and culture rather than occurring in isolation. To test the concept's applicability, we examine whether Asian Americans in the study's sample operationalize relational autonomy as a decisional approach in hypothetical scenarios about organ donation, a practice for which there is considerably lower enthusiasm compared to other racial groups in the US.
View Article and Find Full Text PDFBMC Palliat Care
November 2024
Department of Medicine & Geriatrics, United Christian Hospital, Kwun Tong, Hong Kong.
J Orthop Surg Res
November 2024
Department of Orthopedic Surgery and Sports Medicine, Amsterdam Movement Sciences, Amsterdam University Medical Centers, Amsterdam, the Netherlands.
Background: Children and young adults needing surgery for a primary malignant bone tumour around the knee face a difficult, life-changing decision. A previous study showed that this population wants to be involved more in the decision-making process and that more involvement leads to less decisional stress and regret. Therefore, a well-designed and standardized decision-making process based on the principles of shared decision-making needs to be designed, implemented, and evaluated.
View Article and Find Full Text PDFEur J Oncol Nurs
December 2024
Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, 03722, Seoul, South Korea. Electronic address:
Purpose: To explore the decision-making process regarding Risk-Reducing Salpingo-Oophorectomy (RRSO) among women with hereditary breast cancer in Korea, with a focus on complex interpersonal interactions and sociocultural influences.
Method: This qualitative, grounded theory study conducted semi-structured and in-depth interviews with 17 women with hereditary breast cancer between March and December 2021. Theoretical sampling and constant comparison were utilized for data analysis.
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