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Accessing the Lived Experiences of Children with Illness in Sweden for Health Care Research.
Children (Basel)
December 2024
Faculty of Caring Science, Work Life and Social Welfare, University of Borås, 50190 Borås, Sweden.
Background: Children are a relatively marginalized group when doing research in the context of illness, young children particularly so. This even though children can and should contribute their point of view in providing evidence-based care. This article contributes the experiences of Nurse Researchers in gathering research data in Sweden on the lived experiences of children undergoing needle-related medical procedures, living with home mechanical ventilation or undergoing treatment for cancer.
View Article and Find Full Text PDFParental and family presence are essential: A qualitative study of children's lived experiences with family presence in pediatric intensive care.
J Pediatr Nurs
January 2025
Dalhousie University, Department of Critical Care, Halifax, Nova Scotia, Canada. Electronic address:
Objective: To better understand critically ill children's lived experiences with family presence in the pediatric intensive care unit (PICU).
Study Design: This qualitative, interpretive phenomenological study is grounded in a Childhood Ethics ontology. We recruited children (aged 6-17 years) admitted to one of four participating Canadian PICUs between November 2021-July 2022 using maximum variation sampling.
Recovery From Heroin Addiction: A Qualitative Study.
Public Health Nurs
December 2024
College of Nursing, Kent State University, Kent, Ohio, USA.
Objective: Understanding the recovery process from heroin addiction is crucial as nonmedical opioid use persists. This study aims to comprehensively describe the recovery journey, focusing on the experiences and challenges faced by individuals in recovery to inform treatment approaches and support strategies.
Methods: This qualitative study, guided by critical social theory, emphasized balancing power dynamics and fostering equal participation to ensure all voices are heard, challenging traditional hierarchies and promoting inclusivity.
"Good childhood": children's perception and evaluation of transnational families.
Front Sociol
December 2024
University of Duisburg-Essen, Duisburg, Germany.
In public debates, transnational families are portrayed as a deviation from the norm of "good childhood." In Europe, this is emphasized by the term "Euro-orphans," branding parents' (especially mothers') absence as a violation and scandalizing it. Children's voices are rarely heard in public discourse, and although research is now turning its attention to the "stayer children," they and their perspectives on transnational family life remain underrepresented, especially in Europe.
View Article and Find Full Text PDF"Are we genuinely going to have our voices heard?" The experience of co-producing a blended intervention to prevent relapse in obsessive-compulsive disorder: a qualitative study on the perspectives of experts by lived experience.
BMC Psychiatry
December 2024
Department of Psychology, University of Bath, 10 West 3.25, BA2 7AY, Bath, UK.
Introduction: Co-production involves researchers, practitioners and people with lived experience working in a collaborative manner, with shared power. The potential benefits of co-production are well documented. However, there is little research describing the experience of having been involved in co-production from the perspective of Experts By Lived Experience (EBLE).
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