Autonomous by Extension: Balancing Patient Autonomy and Vulnerability in Surrogate Decision-making.

AACN Adv Crit Care

Lauren Berninger is Assistant Professor, Department of Medicine, Division of General Internal Medicine, Section of Palliative Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland.

Published: September 2024

The experience of serious illness or injury frequently results in increased vulnerability. In cases in which decision-making capacity is compromised, this vulnerability is compounded by threats to a patient's autonomy. This case report presents an opportunity to explore the elaborately entwined relationship between autonomy and vulnerability in patients with severe impairment who are reliant on surrogate decision-makers. Expanded views of autonomy and vulnerability are applied to the case of a young woman with a severe and life-altering spinal cord injury and iatrogenic loss of decisional capacity to illustrate how one can experience enhanced autonomy despite special vulnerability and can be made less vulnerable through surrogate-mediated autonomy. Also revealed is how attitudes and actions of surrogates can potentiate pathogenic vulnerability and disturb the balance between patient autonomy and vulnerability. Through methodical review and robust deliberation, clinical ethics committees can play a stabilizing role in helping distressed care teams reconcile the two.

Download full-text PDF

Source
http://dx.doi.org/10.4037/aacnacc2024399DOI Listing

Publication Analysis

Top Keywords

autonomy vulnerability
16
patient autonomy
8
vulnerability
8
autonomy
7
autonomous extension
4
extension balancing
4
balancing patient
4
vulnerability surrogate
4
surrogate decision-making
4
decision-making experience
4

Similar Publications

Tasers, a form of police weaponry causing neuromuscular incapacitation and extreme pain, were confirmed in 2010 to be used in New Zealand inpatient mental health units. Their use on patients, or tāngata whai ora (persons seeking wellbeing), raises ethical concerns about harm prevention, moral duties, and human rights in healthcare. The New Zealand healthcare system, grounded in principles and rights, regulates procedures to uphold fundamental rights.

View Article and Find Full Text PDF

Health surveillance among indigenous populations in the context of COVID-19: a scoping review.

Cien Saude Colet

December 2024

Laboratório de Avaliação de Situações Endêmicas Regionais, Departamento de Endemias Samuel Pessoa, Escola Nacional de Saúde Pública Sérgio Arouca, Fundação Oswaldo Cruz. R. Leopoldo Bulhões 1480, Manguinhos. 21041-210 Rio de Janeiro RJ Brasil.

The study aimed to identify protection strategies used by Indigenous peoples during the COVID-19 pandemic. Analyzing 56 articles from 2020 to May 2021 across four areas -community organization, governance, communication, and territorial approaches - it found that structural vulnerabilities shaped their responses. The spread of the virus was influenced by environmental, social, and cultural factors.

View Article and Find Full Text PDF

Vaccinating care home staff is essential to protect vulnerable residents by reducing infection risks and creating a safer care environment. However, vaccine hesitancy amongst staff remains a challenge, particularly since the COVID-19 pandemic raised concerns about side effects and vaccination mandates. This study examines how the pandemic influenced flu vaccine hesitancy amongst UK care home staff.

View Article and Find Full Text PDF

In the context of the rapidly aging global population, the older adult vulnerability poses a significant challenge for public health systems. Frailty, cognitive and nutritional status, depression, and grip strength are essential parameters for staging the vulnerability of older adults. The objective of this study is to identify a rapid but multidimensional geriatric assessment tool that can enhance the rehabilitation process for older adults, tailored to their specific needs.

View Article and Find Full Text PDF

Advancing District Nursing Care Through a Learning Healthcare System: A Viewpoint on Key Requirements.

Healthcare (Basel)

December 2024

Research Centre for Healthy and Sustainable Living, Faculty of Health Care, University of Applied Sciences Utrecht, 3584 CS Utrecht, The Netherlands.

The increasing complexity of healthcare needs driven by an ageing population places pressure on district nursing care. Many vulnerable older adults prefer to remain at home, requiring care coordinated with general practitioners and other professionals. This demand for integrated care is further challenged by a shortage of nursing professionals and the lack of standardised approaches to measure care quality.

View Article and Find Full Text PDF

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!