Empowering Citizens Through Translated Patient Summary Access and Sharing in Digital Health Ecosystems.

This paper introduces a mobile framework designed to enhance citizen access to and sharing of health data, aiming to empower individuals with greater control over their personal health information. Accessing and sharing health-related data is essential in everyday scenarios, from routine doctor visits or viewing your health on your own to emergencies where swift access can save lives. It addresses the challenges posed by the fragmented nature of healthcare services and the barriers of language differences in patient records. The framework utilizes the EU eHealth Digital Service Infrastructure (eHDSI) OpenNCP for translating patient summaries and the FHIR Smart Health Links Protocol for secure sharing. A pilot study with 40 participants was conducted to assess the usability and effectiveness of the app, revealing a strong demand among citizens for such innovative health services.