Research About Us, With Us: An Inclusive Research Case Study.

Intellect Dev Disabil

Andrew S. Buck, The Ohio State University Nisonger Center; Richard Chapman, Virginia Commonwealth University; Gloria L. Krahn, Oregon State University; Christine Brown, Braden Gertz, and Susan M. Havercamp, The Ohio State University Nisonger Center; and The Ohio State University Nisonger RRTC on Health and Function.

Published: August 2024

Inclusive research combines the expertise of academically trained researchers with the lived experience of individuals with disabilities to render results that are more accessible, accountable, and meaningful to the disability community. In this case study, adults with intellectual and developmental disabilities (IDD) contributed as co-researchers to a series of studies on mental health of adults with intellectual disability. The research model, specific engagement strategies, and lessons learned are shared. Feedback from members of the research team suggests that including adults with IDD as co-researchers benefited investigators, co-researchers with IDD, and project outcomes. Our case study emphasizes the valuable contributions of research partners with IDD and provides a model that may be adapted and utilized by researchers to enhance their practice.

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Source
http://dx.doi.org/10.1352/1934-9556-62.4.260DOI Listing

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